I must be stuck in a vacuum.somewhere.. after escalating amd moaning to get my CT scsn for the lung, I was also referred for a sinus scan , lung breathing tests, ecg and Echocardiogram..the last test in particular worrying me.
Can I get results? Seens impossible. I m under Barts Hospital. My review appt is now at end of June. I have no contact numbers to call. The PALs team say, speak to your GP, who says speak to Barts as thry instigated the tests. So, i ve put on a negative review on the NHS site, put in a complaint, contacted my MP, complained to NHS England.
It seems to go nowhere. It feels like there is zero common sense in the NHS. Noone seems to be able to picknup the phone and even give me the basic result outcomes.
Maybe its just the way care is delivered at Barts, whose Rheumy website would have you believe its incredible. So meanwhile, I am stressed and on prozac. Thankfully my RA is pretty quiet as have been in the sun. But there seems to be a care deficit in London from an NHS tbat to me, is not overburdened.
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TheBoys
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Do you mind me asking when you had your CT scan? I am aware that there is a huge lack of trained radiographers in the uk and therefore the reports are taking many many weeks to be available.
In my experience, it is always the person that requested the CT scan that the results are addressed to. However, I suspect when the report has been produced it should be available on the IT system but sometimes the different health trusts can make it trickier for access ( ie only ability to get into another’s IT system ...). In my experience my Rheumatologist ( ie a specialist) is able to gain access to these specialist reports.
I guess, taking it each step at a time, you initially need the CT report results with any explanations from a medic to understand what is / or isn’t going on and any next step required. It is encouraging that they have already requested these other thorough investigations ( many of us have to battle to get additional tests). I always say I am happy for further testing as it often can give peace of mind and it’s a good marker of what is going on now. Gives a historical story that can be very helpful for future care.
I am certainly not trying to down play your worry and frustration. I guess I am saying is there a more productive route to gain the update and comfort you need? My path would be my Rheumatologist as any lung issues certainly is under the umberella of RA and should be his / her concern. Also, your GP has a duty of care to ensure you are getting the medical care you need.... at this stage we are saying it’s an “ admin issue” so at least they should be finding out what the current turn around times for these results are!
It’s a new , sunny day, and I hope you get your results soon and that all is fine!
Thanks for the reply..this site is a godsend at times.
The CT was about a month ago, and at time of writing am due to see the consultant now in the first week of July. The test that has freaked me out is the echocardiogram. I m walking about bei ng cranky with loved ones over a feae that there is an issue on the cardiac side, which makes me stressed. My blood pressure became elevated and the gp told me to rest and take prozac.
Ive contacted my GP now to see if they can help, as they will be able to see all my results. I hope some thing comes from it. Thanks for your help x
Not properly am afraid..i have my appt next week. I received a copy of the notes they made at my appt in March. .all I got told resultswise was there are " no significant issues". Ah well
Not really that helpful / no definitive comfort there are no issues. If any consequence I also still have not heard results of my CT scan but am seeing my Rheumatology clinical nurse Wednesday and really hope results are available!!!! In the meantime I still have symptoms and it does play on your mind about what may be going on! Fingers crossed for you.
Don't know if this helps any, but when abnormalities were found in my lungs via an x-ray to yay or nay starting methotrexate, my rheumatologist referred me for a CT scan, which entailed a 6 week wait back 3 years ago. I assume she forwarded the results to the chest consultant as the next thing that happened was I received an appointment in the post. Only when I attended the chest clinic was I told what the diagnosis was by the consultant. As far as I know my GP was not involved.
I'm sure if there was any problem with your ECG the hospital would have been in touch. You will get the results from all your tests at your appointment.
My son has just had another 24 hour bp and it took the referring doctor , his Paediatrician, over 3 weeks to get the results.
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