Finally after every hoop jumped through I have a post bone scan diagnosis of PsA. I was reduced to tears for the entire morning. Finally proof of what I have been saying for a very long time. It’s really hard when nobody believes you. Finally I can start to get some help. Hope you are all well and enjoying the respite of a little sun today.
Finally two years on: Finally after every hoop jumped... - NRAS
Finally two years on
I'm pleased for you, hopefully things will move on in a constructive manner from now on in. Good for you for hanging in there.
I too took 2 years to 'persuade ' my consultant (and GP) that I had sero negative RA, although it was obvious to all: family , friends and me! I think I may be on the right road now, not sure, early days with benepali.
Yes they really make you suffer if blood does not match. I really hope this is a new beginning. I have felt like giving up completely. Normal people would not put up with this amount of pain. Why should we. Thank you so much for supporting me.
What do you mean by "normal people wouldn't put up with this amount of pain". I thought we were normal" just because we have arthritis doesn't make us ab normal.
food-lover clearly means the non-arthritic when they refer to 'normal people'. I am not normal. I am unique. Just like everybody else!
Obviously not that clear to me as I don't consider myself anything but normal and I'm full of arthritis.
I'm so pleased for you in a good way xx
Hope your on the right track now xx
No it’s a shame that there’s not a quicker way to diagnose. It would save a whole lot of pain and misery. Thank you for your reply.
The scan showed some arthritis, plantar fasciitis and enthenticis? of tendons. I have not seen the report although I saw the scan as it was being done. There was a lot of large very white areas over many of the joints. I have been offered steroids to begin with. Then see about damards. Thank you for your support I have also had X-rays, mri and ultra sound of my hand None sufficient to diagnose with. Makes you wonder why a bone scan isn’t offered earlier in the process.
Onwards and upwards is what I would want for you now after this long time of battling. I do hope this is the begining of a better life for you. Take care. 🙂
Hi I’m like others don’t want to congratulate you really. I’m so pleased though that you’ll finally get the much needed help, it’s a shame we’re made to feel that chronic conditions are all in our mind. I’m glad you had a good cry, best way to release the tension and finally feel that you’ll now be listened to. Life begins again it maybe difficult sometimes but I think you’ve already been through the worst. Hope the steroids and new treatment plan work for you. What a relief 😅
Glad you finally have an official diagnosis, and good luck with your treatment xxx
I know that feeling (RA). My consultant was bemused I was happy when he gave me the diagnosis but compared to being ill and no recognition of that, it's far better.
Yes it can be soul destroying to have all the pain, no help and seams no one cares. A diagnosis at least means you can start to move forward instead of being suspended indefinitely with pain.
Obviously wasn't that clear to me.
It wasn't clear to me. I stand by my weight comments. People always looking to blame something else for their weight gain when they have total control over it.
My comments have nothing to do with getting out of bed on the wrong side.