Finally two years on: Finally after every hoop jumped... - NRAS

NRAS

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Finally two years on

food-lover profile image
29 Replies

Finally after every hoop jumped through I have a post bone scan diagnosis of PsA. I was reduced to tears for the entire morning. Finally proof of what I have been saying for a very long time. It’s really hard when nobody believes you. Finally I can start to get some help. Hope you are all well and enjoying the respite of a little sun today.

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food-lover
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29 Replies
hatshepsut profile image
hatshepsut

Hopefully this is the start of appropriate treatment. Good luck on your journey!!

food-lover profile image
food-lover in reply tohatshepsut

Thank you x

Mmrr profile image
Mmrr

I'm pleased for you, hopefully things will move on in a constructive manner from now on in. Good for you for hanging in there.

I too took 2 years to 'persuade ' my consultant (and GP) that I had sero negative RA, although it was obvious to all: family , friends and me! I think I may be on the right road now, not sure, early days with benepali.

food-lover profile image
food-lover in reply toMmrr

Yes they really make you suffer if blood does not match. I really hope this is a new beginning. I have felt like giving up completely. Normal people would not put up with this amount of pain. Why should we. Thank you so much for supporting me.

Mmrr profile image
Mmrr in reply tofood-lover

Your welcome

Cheylann profile image
Cheylann in reply tofood-lover

What do you mean by "normal people wouldn't put up with this amount of pain". I thought we were normal" just because we have arthritis doesn't make us ab normal.

AnneField profile image
AnneField in reply toCheylann

food-lover clearly means the non-arthritic when they refer to 'normal people'. I am not normal. I am unique. Just like everybody else!

Cheylann profile image
Cheylann in reply toAnneField

Obviously not that clear to me as I don't consider myself anything but normal and I'm full of arthritis.

food-lover profile image
food-lover in reply toCheylann

My sincere apologies if you feel I have offended you. My post was not intended to offend anyone. Life’s too short. X

Cheylann profile image
Cheylann in reply tofood-lover

Not offended at all so no need to apologise.

food-lover profile image
food-lover in reply toAnneField

Thank you. X

Nessa28 profile image
Nessa28

I'm so pleased for you in a good way xx

rab1874 profile image
rab1874

Hope your on the right track now xx

food-lover profile image
food-lover in reply torab1874

Me too. I have been asked to take a short reducing course of steroids then look at damards if needed. So it looks like they plan to give me some much needed help. Thank you for your support.

food-lover profile image
food-lover

No it’s a shame that there’s not a quicker way to diagnose. It would save a whole lot of pain and misery. Thank you for your reply.

food-lover profile image
food-lover

The scan showed some arthritis, plantar fasciitis and enthenticis? of tendons. I have not seen the report although I saw the scan as it was being done. There was a lot of large very white areas over many of the joints. I have been offered steroids to begin with. Then see about damards. Thank you for your support I have also had X-rays, mri and ultra sound of my hand None sufficient to diagnose with. Makes you wonder why a bone scan isn’t offered earlier in the process.

Ruth12345 profile image
Ruth12345

Onwards and upwards is what I would want for you now after this long time of battling. I do hope this is the begining of a better life for you. Take care. 🙂

food-lover profile image
food-lover in reply toRuth12345

Thank you. I really hope you are right. Hope that you are as well as can be expected. Wendy

Ruth12345 profile image
Ruth12345 in reply tofood-lover

Thank you. 🙂🌷

Susie-Q profile image
Susie-Q

Congratulations and commiserations. Now the fun really begins! 🌺

food-lover profile image
food-lover in reply toSusie-Q

Thank you

Leics profile image
Leics

Hi I’m like others don’t want to congratulate you really. I’m so pleased though that you’ll finally get the much needed help, it’s a shame we’re made to feel that chronic conditions are all in our mind. I’m glad you had a good cry, best way to release the tension and finally feel that you’ll now be listened to. Life begins again it maybe difficult sometimes but I think you’ve already been through the worst. Hope the steroids and new treatment plan work for you. What a relief 😅

food-lover profile image
food-lover in reply toLeics

Thank you. I am greatful for your kind and understanding thoughts. Hope that you are keeping well.

Ssmart profile image
Ssmart

Glad you finally have an official diagnosis, and good luck with your treatment xxx

food-lover profile image
food-lover in reply toSsmart

Thank you I am surprised at how many people understand my rant. It seams to be more common than you expect. Such a shame really. Hope everyone has a good day

I know that feeling (RA). My consultant was bemused I was happy when he gave me the diagnosis but compared to being ill and no recognition of that, it's far better.

food-lover profile image
food-lover in reply to

Yes it can be soul destroying to have all the pain, no help and seams no one cares. A diagnosis at least means you can start to move forward instead of being suspended indefinitely with pain.

Cheylann profile image
Cheylann

Obviously wasn't that clear to me.

Cheylann profile image
Cheylann

It wasn't clear to me. I stand by my weight comments. People always looking to blame something else for their weight gain when they have total control over it.

My comments have nothing to do with getting out of bed on the wrong side.

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