There is hope for us all !!!

[Leics]

Hey you fabulous people.

Well another appointment with consultant who I’ve been under for about a year now.

After being told that I was virtually untreatable by other consultants in the past and one who said my RA was all in my mind lol, I’ve been seeing a new consultant who is absolutely amazing I’ve had a few glitches but he started me on Olumiant 2mg at the end of last year had to stop for a while due to an issue with prophylactic antibiotic cover which didn’t suit me at all. The reason for antibiotics is that I basically have no immune system so need cover to stop me having every infection in the book. Well treatment is going really well for the 1st time in about 8 years the swelling in my body has reduced dramatically I am having low dose steroids occasionally until the Olumiant really gets to the bits that zero treatment for years has left me with. I’m feeling so much better I can’t tell you how good it is to have utter faith in a doc who has my health and well-being as his priority.

Looks like after another 8 weeks of keeping well (fingers crossed) that Olumiant may be increased to 4mg and Fentanyl patches which seemed to be increasing because I was in such a bad way will be a thing of the past and so will the walking stick and maybe no need for odd courses of steroids either.

What I’m trying to say is I know because of previous cancer and zero immune system that I’m difficult to treat but I now believe that it’s possible for everyone with this rotten disease to be given a lifeline and hope of possible remission. Basically if a fab consultant has found a solution for me there’s hope for so many that they can achieve the same..

Here’s hoping everyone is coping ok atm.

[VeronicaF]

I am so pleased for you, onwards and upwards for you now

[Leics in reply to VeronicaF]

Thanks yeah finally getting there I think 🤔

[Mmrr]

A good Dr can make all the difference, long may it continue for you.

[Leics in reply to Mmrr]

Thanks so much. You’re so right 😃. I don’t know how I’ve ever coped with this rotten disease over the last few years. I was a bit envious of others who had found a treatment that made their lives a little more ‘normal’ I’m still at the stage of thinking it’s all going to go wrong but I’ve always been a fighter. Don’t know why but I really don’t want others to think I’m rubbing their noses in it, just that I never thought I had a hope in hell of remission being a prospect for me, as I’m definitely not a tick box patient.

[Gnarli]

Thank you so much for sharing your wonderful experiences. I'm thrilled that you are feeling so much better and, you're right, there is hope for us all. Thank you

[Leics in reply to Gnarli]

Thanks I just hope my post can maybe give anyone who is really suffering as I was a prospect of thinking maybe it might happen for them too. I’m not there yet but any improvement is an absolute godsend. It’s so nice to be able to bare to have clothes next to my hips and knees without wanting to scream. It’s funny the things we wish for isn’t it 🤪

[hatshepsut]

Lovely to hear a good news post. Hope you continue to improve.....gives hope to us all

[Leics in reply to hatshepsut]

Thanks it means a lot that everyone is so supportive on this forum when things are good or bad. We can all help each other with good advice and occasionally an off topic laugh does me good anyway.