Well long story short, I had a planned appointment with rheumy consultant this lunchtime. Here’s where I am at the moment. Had 6 weeks antibiotic treatment coz my immune system is pants I was started on olumiant (1st treatment for 5 years) not because my RA was in remission but because old consultant said I was untreatable. I have the most amazing new consultant hence the Olumiant but only had 10 days of 2.5mg and problems began its absolutely to do with antibiotics which I’m never any good with I found I made every excuse under the sun because Baracitinib or Olumiant was beginning to help. So antibiotic and Baracitinib stopped. Still have gut symptoms and a few other issues but starting to crash and burn again with joint pain ++++. Anyway to the point was dreading seeing consultant who was wonderful in sorting this treatment out but he listened, agreed and is putting into action a new plan even got a short course of oral steroids to tied me over, which I was very surprised about because other docs have said no coz of immune system but I know he knows me and is in discussion with immuno about me too. I realise I’m a bit of enigma when it comes to treatment options but I’m so glad there’s consultants out there who listen to patients and still feel they’re not prepared to allow anyone to suffer as I have been without thinking outside the box.
I hope everyone is ok and not suffering too much in the cold 🥶 My faith is restored that there is help out there and that light is beginning to shine in that dark tunnel. Hooray 😀😃
I needn’t have worried about appointment all is back on track sort of lol.