New meds - which one’?!?

[Roostermum]

Hi there,

Have just found out the Benepali is no longer working...😔 and my Rheumatologist have now asked me to look into Tozilizumab and Olumiant (baricitinib). Read the leaflets and nearly choked on the side effects! Unfortunately I have a tendency to tick an awful lot of boxes on meds with a long list of side effects, which is why I’m really interested in hearing how others have found them. Any feedback/comments are great appreciated.

[Pat9442]

I have been on Tocilizumab for nearly a year. Firstly by self injection and for the last eight months by 4 week infusion. I have had no side effects at all and so far have stayed pretty well

NB. I changed to infusions because I no longer had the power in my hands to press the syringe

[stbernhard]

Hello,

I'd recommend that you go on the NRAS website and look at their very good pages on medication. You should find most of which are available. Even water has side effects.

[Roostermum in reply to stbernhard]

Super, will do. 👍

[Leics]

Hi, I usually have every side effect possible with most drug treatments even those not for RA. I started on baricitinib about a month ago and things are improving at long last. I don’t suffer with any side effects at all on this drug which is a big relief. The best thing about it is that it’s in tablet form so any unwanted side effects or issues and the drug is out of your system within 24 hrs. Looking at the list of side effects always makes me nervous too but touch wood this one doesn’t give me any.