NRAS know that the process of claiming benefits are a major issue for many people with Rheumatoid Arthritis (RA) and Juvenile Idiopathic Arthritis (JIA).
We have launched a new survey to understand how the process of claiming two of the newest benefits, Personal Independence Payments (PIP) and Universal Credit (UC), impacts our Members and Supporters. We'd be really grateful if you could spend a few minutes completing the survey, which will enable us to campaign for improvements to the welfare system.
Wow what a survey, made me look back over the last couple of years. Although I am in pain now I feel that isolation plays a huge part in RA as many medical staff and people just don’t understand the condition. Knowledge is key.
I am now fortunate that because of RA I have met some brilliant NHS staff who support me and the members in this forum, just too many to name who had fantastic advice.
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And this is an update to met some brilliant NHS staff.
Many of you know but it is now official.
A couple of months ago I found out that a registrar had taken a very personal interest in my health and wellbeing.
We have been together for two months, both her daughter and mine are of the same age and best friends at school.
All I can say is RA is showing me a different side to life . If it had not been for this disease I would not have met this very special person that has come into my life.
I think it depends on what you buy...health shops are sure to tell you what they sell is the best...but you need to research the contents needed & then buy it in the UK from a reputable source. If you buy online you can never be sure what you are getting.
I seems to be very subjective....some people seem to get great relief & others find it useless.
Don’t be scared MsTrevelyan, it might help to speak to someone at citizens advice if you think there are benefits you should be claiming. It’s not so scary if you have someone to help you. 😊
As I was diagnosed post retirement I don’t think I can claim UC or PIP. I have claimed the Attendance Allowance and am now receiving it. So I assume there’s no point in me taking part in your survey.
I think other forms of benefits ie disability living allowance should be on the survey because I haven’t been changed over to pip yet. I’ve got to admit I’m terrified when they do get around to changing it for me. Although my RA is still as debilitating as it ever was I’ve seen lots of people who have had major problems being reassessed.
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