So after my long 6 week wait I got my results today, it's not rheumatoid but I was told psoriatic arthritis. However I left my app this morning just feeling so disappointed. Everything was just so rushed Iike they just didn't have time. First I was called to check weight an blood pressure, bp was high so I explained to the nurse I was feeling nervous so she said I'll check you again shortly but of course I never saw that nurse again. Another specialist nurse called me in to ask how I was coping with my arthritis, an I asked so I have arthritis then? She looked confused an said have you not been told about your condition? She apologised an examined my joints an explained it was PSA. Rheumatologist finally came in, quickly explained all about methotrexate filled out my form to give to the gp for my scripts an left. There was no discussion over my blood work or xays or anything like that, just start the methotrexate on a day that suits an we see you again in 8 weeks hopefully. An oh I also got another injection in the backside. So at least I know what I have now an will be starting treatment but I just wished it wasn't just as rushed.
Results in.: So after my long 6 week wait I got my... - NRAS
Results in.
I despair when I hear experiences like this, but unless we make our feelings known things will not improve. A wee letter to the department politely but factually stating your experience may be worth while.
Yes I think I will explain all to the gp, I was told I would receive a leaflet with their phone numbers if I needed to ask anything but of course it was so rushed I didn't receive it! I think I will be better prepared for my next app.
That’s a disgrace and not very helpful at all, it’s bad enough having to deal with the news off having psa without being rushed in and out off the appointment, it’s a lot to take in but you’ll get there and everyone here on this lovely forum helps each other xxx
Thank you it is a great forum, I've already read great tips about taking the methotrexate in earlier posts as I was just told the basics an given a booklet to read. So frustrating I know but at least I'm on my way now to getting better.
My dad was the same took years for him to get diagnosed it was only when he broke out in the rash all over that's when they started to listen to him. Thankfully I don't have the rash an was diagnosed quickly.
Goodness that was cruel doing that an you not knowing what is wrong.
Going to see my gp on Thursday once I collect my script for the methotrexate.
It shouldn’t have been so rushed. Sorry that happened to you. Did they explain that you need to get bloodwork again before next appointment to compare previous results? If not, check with them to see if you need to. Hang in there. Hope you’re one of the luckies who goes into remission. 😊
Yes they said to get blood work done every 2 weeks with the gp but I just assumed that was because of starting methotrexate? I think I'll check with the nurses what all there testing for at the time just to save any confusion. Wouldn't it just be great if we all could go into remission, I'm not sure what to expect over the next few weeks but I'll get there an if I'm ever stuck at least I have people on here to ask.
Had a rough time of it so haven't been here for a long time. However, so sorry this was your experience, that is really awful.
May I suggest that you talk to your nurse specialist; let her know how you experienced the appointment. I have found that sometimes they forget they are dealing with a human beings and not the hospital number above your name. By having a word they are reminded you are not a number!
Hope things get better for you.
Blood in urine!
Feeling very disorientated ?
My Last steroid injection, plus blood results......
Why isn’t it just straight forward ?
