Hi everyone, I hope you’re not all suffering atm. Well I just had to share my good news. I went to see my consultant rheumatologist this morning, prearranged appointment I am seeing him every 4-6 weeks currently. So I’m in the grip of a terrible flare can’t tell you the pain that I’m in but I bet you’ve all been there at some point. I have RA and my immune system is severely compromised I am vey difficult to treat because of previous bowel cancer in my 30’s now in my early 50’s. I am allergic to most antibiotics but fine with penicillin.
I was started on baracitinib (Olumiant) 2mg in October last year but the antibiotics I was given to help keep infections to a minimum didn’t agree with me big time. So no treatment since then after only 8 days of olumiant (so disappointed) but today doc has decided with loads of discussions with immunology that olumiant can begin again with penicillin V as a immune system prop up. Also doubled steroids as I’m struggling so badly atm I’ve only been on a 5mg dose for a month so only up to 10mg. Fingers crossed I don’t crash and burn this time but I’m so hopeful to take control and maybe get a new lease of life.
Originally my lovely consultant wanted me to have immunoglobulin therapy but there is such a national shortage that’s not going to happen but to be quite honest I don’t want to have to go to hospital 5 days on the trot every month to sit on a drip for hours anyway lol.
So wish me luck 😃 new life and taking back control starts today.