Tablet question : Hello I’m taking leflunomide and... - NRAS

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Tablet question

11 Replies

Hello

I’m taking leflunomide and also have hydroxy that I’m not happy taking . I’ve not took hydroxy for a while .

What are others taking with Leflunomide

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11 Replies
ruth_p profile image
ruth_p

I was on leflunomide and methotrexate and Enbrel/Humira. I don’t take the leflunomide anymore and have tocilizumab with methotrexate.

chrisb4 profile image
chrisb4

Only taking leflunomide at the moment.

cathie profile image
cathie in reply tochrisb4

Me too.

in reply tocathie

How are you finding one drug only for the RA ?

Ssmart profile image
Ssmart

I’m taking hydroxy only not lefunomide... may I ask why you aren’t happy taking it? Was it due to side effects? I seem to be doing ok on it - 11 months now x

in reply toSsmart

I’ve been taking it a long time . Last year I had an eye check at the hospital as you know it can build up behind your eyes . The thought of that actually freaks me out as there’s no way of stopping it or curing it . It just doesn’t feel right .

helixhelix profile image
helixhelix

If you're not happy taking a drug you need to talk to your doctors as not much point them prescribing things you don't take. And I recall your medical history is pretty complicated so they need to think carefully about what's best for you.

People can take Lef with all the other DMARDs, and with biologics. So it's just what works best for you and as you know that's hugely variable!

Hope you find the solution soon.

in reply tohelixhelix

Thanks , I will mention it Im feeling ok on leflunomide a few flair ups but pain meds help. X

Leflunomide, Methotrexate and Pred

Leics profile image
Leics

I took leflunomide for a while didn’t help but then neither did hydroxy. In my opinion only my own, think lef.has more side effects etc to be worried about than hydroxy. We are all different what works for some doesn’t for others. I hope that it’s good for you and you can stay on it if it helps. I’m only able to try one dmard at a time and I can’t tolerate mtx. Good luck I’m sure that combination therapy is better than one alone and have to think that consultants wouldn’t prescribe both hydroxy and lef. If it wasn’t ok to do so. However you know your own body better than anyone so you’ll also know what works and what doesn’t.

in reply toLeics

Thanks for you reply

I’m doing ok on leflunomide thankfully it’s not giving me any problems

X

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