I just want to say something regarding this past years roller coaster.
I , as many of you know, have been in a year long Odessey.
From having to fight for testing to non stop testing , drugs, specialists and a very long list of labels. Bottom line, I will not get better only much worse. Despite this realization, I feel free for the first time.
It suddenly came to me, why did this happen? I think it is time to STOP. So my body brought me a sudden and complete stop. We are all so busy doing we simply forget to be. I have chosen to take back my body. I will not allow any more experimentation. I will be the only person who decides what I will take and what I will not. I intend to let my body heal itself. I have western medicine a year now time for a natural approach. Here goes, I am doing this under doctors supervision. My Rheumy is fully aware of what I am doing. She is very supportive. She knows I went ten yrs without treatment so I now I can handle it. She has arranged for an Internists to see me in lieu of GP. She is the bomb. Find a doctor you trust. It makes all the difference in the world. I think that many health care 'professionals' loose their humanity when faced with so much suffering. It is a survival tool that in my experience, simply does not work. The key is balance.
I for one have , despite the pain, begun to stop and smell the roses. I no longer take the many wonders we have for granted. The ability to walk, care for yourself and simply to be. I was always working fourteen hour days to avoid dealing with the noise my body was making. Now I am learning to listen again.
Stop all the noise from outside and listen to our body. It will never steere you wrong.
Not all doctors, people, health care profe