There's Light at the end of the Tunnel: After a year of... - NRAS

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There's Light at the end of the Tunnel

jim1063 profile image
14 Replies

After a year of feeling crap and losing 4 stones, due to taking Methotrexate and Sulfasalazine and this horrible disease, there is light at the end of the tunnel I hope. I started self injecting 4 weeks ago with Erelzi (50mg Etanercept once a week) what a difference. The swelling in my wrists and ankles has subsided a bit and the fatigue isn't as bad. I have also cut back on my painkillers. The stiffness in my joints still takes a couple of hours to ease in the mornings . I never thought I'd see the day I'd look forward to a Friday because I'm giving myself an injection. Here's hoping I don't take an allergic reaction to this drug.

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14 Replies
sylvi profile image
sylvi

Well done you for losing so much weight.xxxx

jim1063 profile image
jim1063 in reply tosylvi

Hi Sylvi thanks very much for your reply. The only prob with losing so much weight to this horrible disease it costs a fortune to replace my clothes!!!!

stbernhard profile image
stbernhard

Hello Jim, I am so pleased for you. I remember the first 11 months living with RA(2009 onward). Pain, fatigue, frustration etc. Then I got the right drug mixture and never looked back. In remission, so I lead a normal life with very few restrictions. Even reduced drugs and off sulfasalazine. I very much hope you'll go the same way. Keep in touch. All the best my friend.

jim1063 profile image
jim1063 in reply tostbernhard

Hi Bernhard thanks for your reply. Your bang on I didn't realise how frustrated and down heartening this disease would me. The thing that kept me going is the fantastic guys on this forum. Take care Bernhard.

Jan101 profile image
Jan101

Well done 👍 I think 🤔 that you must be very proud of yourself. Keep up the great work. Love and hugs 🤗🤗🌹🌹xx

jim1063 profile image
jim1063 in reply toJan101

Hi Jan thanks for taking the time to reply to my post it's much appreciated. All the best and take care.

Jan101 profile image
Jan101 in reply tojim1063

You are very welcome and you take good care to. 🤗🤗🌹🌹xx

Gnarli profile image
Gnarli

Brilliant brilliant news. I'm thrilled you have had such a positive result from etanercept and long may your improved health continue

J

jim1063 profile image
jim1063 in reply toGnarli

Hi J thanks for the reply. Hopefully I'll get some normality back in my life and get on top of this horrible disease . You take care and look after yourself.

Hi Jim - That is wonderful news. Nothing is better than being pain free, or at least pain reduced....

jim1063 profile image
jim1063 in reply to

Hello Caery thank you very much for your reply. It's a great support knowing guys like yourself that I haven't met take the time to read and reply to posts. Take care of yourself.

kkminton profile image
kkminton

Good luck with all my friend. So glad you are getting relief

jim1063 profile image
jim1063 in reply tokkminton

Hi kk thanks for your kind reply. It's great that guys like yourself care about other people.

lovekittys profile image
lovekittys

I am so happy for you, hope things get better and better. :)

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