Lack of energy..........

[sylvi]

I have no energy at all i feel so tired and exhausted. Can't find the energy to do anything. Feel very tearful as well. I have no motivation at all. I could go to bed and just lay there....xxxx

[Sanbanan]

Aww bless you Sylvi.

I feel the same at the moment.....suspect it's a flare but I feel absolutely exhausted and so tired.

I have to see a neurologist in a couple of weeks as the nerves in my neck are being crushed due to deterioration of arthritis in cervical spine.

You get fed up when it's relentless don't you?

Sending hugs your way Sylvi xx

[Rubyroo1]

Oh that's not good - perhaps you should head to bed to rest, maybe watch a couple of comedies to cheer yourself up ? Hugs x

[Hidden]

Oh no Sylvi. Sorry.

I think we all know how that feels. I'm cream crackered after doing the shopping. Sent doggo off with dog walker.

You rest up today. Pamper yourself. Maybe tomorrow will be a better day.

Have a hug. And shep sends some friendly wags.

[Hidden]

Sending gentle hugs Sylvi. XXX

[Ruth12345]

So sorry you feeling this way Sylvi know we care. Gentle hugs to you. Xx

[Doughnut61]

Have a little cry if you can😢 then sleep until your mojo comes back x it will sweetheart 💕💕💕

[Elswick]

Poor Sylv it’s not like you to be down come on I look up to you and admire what you have been through some times your letters keep me going have a rest bash the pillow and get back soon sending you an angel hug xxxxx

[Mmrr]

Sylvie, it's okay to feel low for a wee while. Rest up, and if you have the energy think of something nice you want to do when you have a good day.... then do it...it creates good vibes and memories when you eventually get it done.

I visited the psychologist yesterday and she stressed the importance of giving myself some thinking space and letting go of the things I can't control (like a bad day). Not easy.

[sylvi]

I am getting a lot of this at the moment and when i see the rheumy next (which is shortly,can't remember date) i will raise it with him. Thank you all for you kind words. xxxx

[cathie in reply to sylvi]

This time of year doesn’t help, Sylvi. Maybe there’ll be a bit of sun where you are today. Can you find somewhere to sit in sun? Xxx cathie

[sylvi in reply to cathie]

Well hello stranger so lovely to hear from you. I hope your as well as your body allows you to be darling. I am going to a parade this morning with hubby and daughter. This next couple of weeks are going to be bedlam and i won't get to all of them not like i used to do sadly,but it is what it is no use moaning about it.xx

[cathie in reply to sylvi]

I’m not as good as I was a year ago I think but it’s bearable. I hope you don’t get too cold on those parades. An important anniversary xxx

[sylvi in reply to cathie]

Like you things have gone downhill with me also darling. I can't wait to see the back of this year.xxxx

[Nsmith13]

😘 and a big hug we are all thinking of you your one of the best you take care put your feet up an snooooooooooozzz x

[Shalf in reply to Nsmith13]

Been thinking about you Lovely. Are you ok? Xx

[Hidden]

Aw Sylvi sorry you’re so low; you’ve had it much longer than me so not trying to teach your mother to suck eggs but did you ever think of cbt therapy. I got referred by gp to 6 week group one for people with long term conditions & loads of it was really helpful for depression/fatigue/ anxiety that goes with this rubbish deal in life. Knowing you you’ve probably already been there bought the T-shirt but just a thought. Really hope you feel better soon, hugs xxx

[Stormpetrel]

Hi Sylvi

I am relatively new here but I am so impressed how supportive everyone is. United in pain.

So sorry u r feeling so low. I have truly been there not even energy to look at Tv and holding up a book is difficult. Yep just doing absolutely nothing it’s so grim. So easy to get very down. But remember united we stand and I really hope it passes soon. I also think we tend to be very hard on ourselves. You are probably a ‘do..er’ like me usually on the go getting ‘stuff’ done. It’s so contradictory to feel so fatigued.

I had a very close friend who died of cancer age 48 same age as me, when she was very near the end I was poorly with RA and I remember her saying ‘if you can feel the sunshine on your face, you are having a good day’

Sometimes when the chips are down for me I think of this. Really hope you can get to do something you enjoy very soon.

[sylvi in reply to Stormpetrel]

WOW darling that is some analogy and something i think i will try to remember in the future. Thank you for that.xxxx

[pauluk60]

hi sylvi what can do to lighten up a bit heavy music nooooooooooo maybe not bash him if you had the strengh maybe what can all do for sylvi have a party arghhhhhhhhhh so sos not tobe to light had it myself just coming out you will b back as best as you normally are shake it off girl i bet you could smack me one xxxxxx paul

[sylvi in reply to pauluk60]

Oh Paul you can make me laugh anytime darling. xxxx

[pauluk60 in reply to sylvi]

good syl hope you are feeling a BIT BETTER this morning but i know it can go on like me good to laugh/smile i am a bit clown

[sylvi in reply to pauluk60]

J|oin the club Paul,i have a habit of saying one thing knowing full well that there is another ruder meaning to it and watching peoples faces when they start giggling.xxxx

[pauluk60 in reply to sylvi]

I think were on a similar wavelength sylvi

[sylvi in reply to pauluk60]

You bet we are. There used to be some ladies on here who we used to have a great laugh with and so ridulous as well. One of them died and it hit us all hard. So i am going to try and instil a bit of laughter here for a change as we all suffer in our own way darling so anything silly or ridulous share it.xxxx

[Fruitandnutcase]

Oh Sylvi, don’t say that. I hate to think of you feeling so down. You’re such a trooper and we all love you. Why don’t you have an early night, a cry if that will help then tomorrow take yourself along to that charity shop you were banned from last Christmas and annoy them. That should perk you up.

[sylvi in reply to Fruitandnutcase]

Oh my you remember that,heavens above that made me laugh. That was so funny at the time wasn't it. Getting banned from a charity shop,you couldn't make it up could you. I have never been banned from any pubs when i was younger and underage and drink banned from a charity shop.Well what can i say thanks for the laugh.xxxx

[Leviset in reply to sylvi]

I got banned for a month from The Student’s Union at Newcastle University in 1966 for ‘Ungentlemanly Behaviour’!! I’ve still got my very battered Union Card with a picture of a very naive 17 tear old me and the Crime & subsequent punishment is still just about legible, stamped on the back page!

[sylvi in reply to Leviset]

That is so funny darling. This happened to me about four or five years ago and funnily enough it was a sunny day as well and about this time as well.xxxx

[Fruitandnutcase in reply to sylvi]

How could anyone forget that, it was the funniest thing I’d heard in ages, just brilliant. You could always try for another banning and start a collection - imagine - you could even work up to an Asbo! Glad it made you laugh and I hope you feel a bit better today (((gentle hugs)))

[sylvi in reply to Fruitandnutcase]

I might not feel better but i certainly feel brighter from the laughs i have had this morning. xxxx

[Zip1]

Hi Sylvi, I hope your day got a little better! It is the pits when we feel so down, I wish I could help but please take care and be kind to yourself. Sending loads of hugs! X

[sylvi in reply to Zip1]

Zip all your comments help me my darling.xxxx

[Hattie23]

So very sorry. I guess that's RA being horrid. I kn ow it's tough but you need to give in and go to bed. Rest but you need food and lots of drink. When a flare up you feel so tired and frustrated and we all try and fight it but when like this we Need to give in. I'm in one too and missed my grandsons school bonfire last night. A couple of days rest hope will re charge me. Try the same love and if not you need some help from your GP. Big hugs to you. X

[sylvi in reply to Hattie23]

I spent the evening in bed watching tv. My recliner is flat out so i am laid out resting. That is how i am most days now.xxxx

[sylvi]

Morning all,i slept well and so we will see what the day brings.xxxx

[Hidden in reply to sylvi]

Good morning! Hope you feel better?

There was a beautiful sky this morning when I was out walking stinky. An amazing flash of red against a rumble of clouds.

Have a goodun dear Sylvi. I'm taking a couple of mates out for lunch today. Tom had his 80th birthday when I was in the Brecons, so I'm taking him and his wife for lunch at local pub to make up for my absence.

[sylvi in reply to Hidden]

Well i hope you have a lovely meal darling.xxxx

[Mmrr in reply to sylvi]

morning sylvi , hope your good sleep has a positive impact on your day, today.

[4seasons]

So sorry Sylvi , I think most of us have been through this extreme fatigue , I always think my body is telling me to rest, to stop pushing myself so I sleep hours in my recliner. It is frustrating not to be able to do what you want to do but this is RA !

Take care Sylvi , healing thoughts are sent to you x

[daisychains58]

Hi Silvi......sleep sleep and more sleep if that’s what you need..just laying there doing nothing is good, it’s just horrible, chronic fatigue RA style. Hope you feel better after resting and sleeping as much as you need...

Silvi Sleeping Beauty 🤗🤗🌼🌼🌸🌸. Loved the post about sunshine on your face, that is so true.

[MDEC66]

Sylvi - glad you're feeling a bit brighter today. You getting banned from a charity shop - recounting the story might make you smile! What on earth happened?

[sylvi in reply to MDEC66]

I asked about a price on a wind up christmas tree a tin thing. The bloke said it wasn't for sale,and i just said it should have a not for sale sign on it. Then he ranted about the trees in the window and they were not for sale and i added,but i don't want the tree. Then he got verbal and i more or less told him where to stick it in a not polite way. He then promptly banned me. It was years before i went back in there and only after they had a new manager and was told he didn't have the authority to ban me. xxxx

[MDEC66 in reply to sylvi]

You're a legend! Take it easy.

[Zip1]

Lol, give them hell Sylvi! The sun is shinig here this morning, always makes me feel a little better I hope it is with you too. Don’t try and do too much today, give yourself time (however frustrating that is!) xx

[cathie]

Being banned like this must’ve been horrible but it makes a hilarious story now xxx

[sylvi in reply to cathie]

Cathie it was funny at the time as well,i lost them a lot of trade at the time though.xx

[Fruitandnutcase in reply to sylvi]

Funny? That’s an understatement, it was hysterical and I’m still talking about it. I can’t believe it was so long ago. Doesn’t time fly.

[sylvi in reply to Fruitandnutcase]

It sure does darling.xxx

[petalnumber2 in reply to cathie]

Hello Cathie, it's a long time since we last caught up with one another ! After a couple of years of being an extremely busy carer for my husband, and not having much time for anything else, I now find myself with lots of time on my hands since Ian passed away a year ago. I am doing OK, I'm glad to say. But, how about you, how are your knees ?

I remember that they were causing you a lot of problems !

June xx

[cathie in reply to petalnumber2]

So sorry to hear about your husband. But glad to hear you’re busy and doing well. My knees are no longer a problem since I had two full replacements. I’ve been concentrating on doing things while I can, spending a lot of time in the Highlands in our little house and doing a degree in painting. We’re off there tomorrow for a couple of weeks, enjoying getting to know our lovely neighbours and just looking a lot.

I’d love to hear your news

Xxx

[Kalimera57]

I too hope today is better for you Sylvi. You are always so compassionate and caring to others on this site.

I can’t remember what meds you’re on but Floradix herbal tonic really sorts out my fatigue, along with lots of fresh green veg and fruit. Not to mention extra rest.

[sylvi in reply to Kalimera57]

We are struggling to get that so i take spatone instead darling.xxx

[Shalf]

The inflammation burns our energy too doesn't it. Maybe laying in bed isn't such a bad idea for now Sylvi. I've been drinking good old Yorkshire tea lately with no milk/sugar. It is uplifting. Rest first then try a cuppa for an instant boost! Take it easy sweetheart and it's really ok to let the tears flow! xxxxxxxx

[Kalimera57]

Boots has it Sylvi

[jomojo]

Dear sylvi.

So sorry to hear that you've been struggling and feeling quite low.

Your colourful spirit darling has lost its get up and go.

Winter is robbing you of energy, scooter rides and charity shop brawls.

Thank goodness for this forum and our friends giving support with wise calls.

So if yesterday we tried to catch the fog and mist.

Today we try and embrace the sunshies kiss.

Best wishes for good days to come. XXX

[petalnumber2]

Morning Sylvi,

It's good to talk to you, but sorry too know that you too have problems with exhaustion, or overwhelming fatigue. I have a big problem with it as well ! I do call it overwhelming fatigue because it best describes how I feel. It really messes with my life, it is sometimes difficult to make/keep arrangements and appointments isn't it. And the worst thing about it is that you feel like nothing on earth.

When it is in full swing there is nothing I can do , but to give into it and either go to bed or be best friends with my rise/recline armchair. I hope this message finds you having a better day. Take care and be kind to yourself.

Lots of hugs, June xxx

[LadyJan]

I can sympathize with you Sylvia, not a nice feeling..but sometimes bed is the only place you can get relief. I am sure most people on this site, Inc me have been there.....rest and recover from what do one a flare....have you overdone it!!! Ladyjan xx

[helenlw7]

I’m honest not surprised to hear you’re tearful and lacking motivation to do anything. Your health issues have been going on for so long. Have you discussed this with your gp? What about using some of the meditation videos that HappyLondon talks about?

[cathie]

Best to rest Sylvi xxx

[Hattie23]

If it lasts a few days signal for help you may need more pills or physio or may e just fresh air which helps me out of proportion xx

[Bradclew]

Hi Sylvi

Me I’m so down and miserable

Tired exhausted and wondering where it’s all going I’m on steroids, Leflunomide and now Benepaly my fourth injection is due Mon so why like you aren’t I picking up

My elbows and hands are so painful and I can’t feel my little finger or fingertips on both hands I’m taking painkillers that are addictive if taken for more that a few days but I’m caring on because

I can’t stant the pain in my arms and hands

Where do I go from here I ask myself xxjean

[sylvi in reply to Bradclew]

Hugs darling i wish i had an answer for you my darlin i eally do.xxx

[Shalf in reply to Bradclew]

Read the diary post today. Hope we can find those answers! Sending healing thoughts and hugs your way xx

[nablur]

So maybe it’s just time to take a day or two to just lay low? Are you eating and drinking ok? I feel like that sometimes and just have to listen to my body.