Humira relapsing polychondritis

[Charmingqueen76]

My daughter 17 has a super rare autoimmune relapsing polychondritis. It attacks cartilage in her trachea. Her throat below vocal cords was size of drinking straw. Was hospitalized 2 weeks january at memorial herman houston.She had laser surgery april 2018. By her 2cd surgery 4 months after in August 2018 her trachea was back to size of drinking straw. They lasered an opened it up again. Shes 11 weeks into humira injection....does anyone here have random bruising, throwing up and eye dialation taking humira? She throws up all the time

[Hidden]

Nothing remotely helpful to say but sending good wishes to you both. I hope she gets resolution and feel for you as a Mum.

[Charmingqueen76 in reply to Hidden]

Thank u

[Downtime]

I’m on Humira and I havent had any of the symptoms you describe. Sorry I can’t be more helpful. I do hope they can help your daughter longer term. You must be so worried.

[Charmingqueen76 in reply to Downtime]

Yes I am very worried. Thank you

[Gigi71]

So sorry to hear about your daughter's condition, I have been on Humira for RD for ten years, I do get random bruising, but could be attributed to other medications I take. I really do hope they can find a better treatment for your daughter as clearly this bio is not helping her. What do the medical team advise regarding these side effects. All best wishes. X

[Charmingqueen76]

They want her to stay on it. . Thank u

[Gigi71]

Oh dear, they must feel this treatment will help. It took about 3 to 4 months to bring any relief for my condition. It's so hard to watch your daughter suffer so. I do hope they are closely monitoring her. Sending gentle hugs to you both. X

[Charmingqueen76]

Thank u