Tocilizumab Injections: I’ve recently switched to... - NRAS

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Tocilizumab Injections

Ruby2002 profile image
6 Replies

I’ve recently switched to Tocilizumab injections after 14 years on Infliximab infusions. I’ve only had four injections but have yet to see any positive results, in fact after being fairly well controlled I feel my RA is getting worse by the day.

I wondered if anyone has had any good results on the injections and how many you had before seeing any improvement. I’m not on MTX as I can’t tolerate it.

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Ruby2002 profile image
Ruby2002
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6 Replies
oldtimer profile image
oldtimer

I see that you haven't had any replies yet - but if you put 'Tocilizumab' in the search box, you will find the previous posts on this subject. That might help, but also have a look at the NRAS website about treatment as there are now lots of alternatives.

allanah profile image
allanah

Hi. I'm just about to swap to injections from infusions. My biol9gic nurse said it completely depends on your weight. The amount if tcz for infusions is calculated on your weight. The injections ate a standard dose at the lower end of the infusion weight.

So I have now l9st enough weight to be on the lower dose of if tcz which is the same as the injection dose.

Check what dose they were giving you on infusion compared to injection.

Ruby2002 profile image
Ruby2002 in reply toallanah

Thanks that makes sense. I was on Infliximab infusions and that was calculated by weight but you’re right the Tocilizumab injections are a standard amount. I think I was hoping for a quicker result as I used to feel great the day after my Infliximab infusions. I think I just need to be more patient!

allanah profile image
allanah in reply toRuby2002

Me too. But we want to go away in the caravan to spain for 6 weeks so I can take the injections with me. But my rheumy said if I feel worse I can go back on the infusions after the trip

Ruby2002 profile image
Ruby2002 in reply toallanah

Wow, that will be an amazing trip. Make sure there’s space in the fridge for the injections! Mine is thinking about switching me to infusions which I think I’d prefer. I’m pretty rubbish at the jabs despite two years of Methotrexate injections. I used to quite enjoy my infusions, I’d turn up with a book, a coffee, a cake and put my feet up and relax, my nurses used to say it was like going to a spa!

allanah profile image
allanah in reply toRuby2002

He I think after the trip I will go back.in lol !

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