Tocilizumab injections

Hi. I'm waiting to start the infusion of this. I have been told it's not available in an injection in my area yet. Would be interested in hearing how you find the injections when you get them & if you find a difference between infusion & injection.

Rachel x

I have rang my nurse to enquire if I can over to injections today....still waiting for reply.

I don't have methotrexate either by tablet or injection because of bad reactions. I have had injections of humaria before which apart from reaction at injection site they were fine. My last infusion my vein collapsed and they had to stop it as my veins are quite small, so injections for me would be better.

I don't have methotrexate either by tablet or injection because of bad reactions. I have had injections of humaria before which apart from reaction at injection site they were fine. My last infusion my vein collapsed and they had to stop it as my veins are quite small, so injections for me would be better.

Just had call from nurse who told me that they are going to try and put as many people as possible onto the injections

Hi Alison, I am reading many blogs about the injections, I'm due to have my third infusion tomorrow, I was told injections would be available in Rochdale before I go abroad in May, but the story keeps changing. Let us know how you go. Sharon x

Thank you Alison x

I've just started tocilizumab last week (after 4 years of rituximab, sadly no longer working for me) - put straight onto the injections which is great as I've now got back 4 days per year spent at hospital having rituximab. Syringes say to take out of fridge 30 mins before so not old when inject - very easy to use, with clever spring thing that covers the needle once you take it out of the skin. Easier than the Humira injections I had before rituximab, and much easier than my methotrexate which comes in a standard syringe which has to have the cap removed & a needle put on - sometime I don't quite tighten it properly then waste some of my mtx before I notice...... So good luck, and hope you find it as easy as I do

Thank you Sally. Its still not an opption yet at my hospital but soon as it is i shall try it. Let me know if you notice any side affects please xx Alison

Hi, would be interested to know if anyone else has started Tocilizumab on infusions, which I was on for a year (4-weekly), and then moved to weekly home injections, which I've now been on for 10 weeks. I was doing quite well on the infusions, and although it took about 5 hours or more to get to the hospital, have the infusion and then home, I didn't mind. Now I'm getting more pain from my hands, feet & knees, and wondered if this is just me, or the injections not working as well?