Hate RA

[Dee0302]

I’ve always been healthy and I’m having a really tough time accepting this RA diagnosis. Did the homeopathic path which worked for 8 months then I had to stop due to unrelated surgery. RA flareup forced me to take MEthotreate. I hate this !

[Amy65]

Know exactly how u feel I've had RA since 1997 take care amyx

[popsmith1874]

Know how you feel, 53 pensioned off ill health had RA 4 years, always been healthy, but have now come to terms with illness and am fighting back to fitness and at moment only half way up the hill xxx

[helixhelix]

Who doesn't hate it!

Talk to your GP about getting some talking therapy to similar. My experience is that once you do try to accept it and come to terms with it things do improve.

[sylvi]

I don't think any of us like RA,and i don't think any of us accept it,i am always pushing myself when i feel fairly good. xxxxx

[HappykindaGal]

I know how you feel. Ive had it just over 2 years and I'm on 3 DMARDS and steroids. I've become resigned to the fact that I'll have some days that are better than others. I still have amazing friends, I still run a business. The people around me know that I may be a little less reliable than before and they're fine with that. I used to do ' The Miracle Morning'. 5.30am start etc...that's gone out of the window! I do what I can, when I can. Beating yourself up isn't going to help you. 😀

[Simba1992]

A homeopathic path? What was that? If it worked why didn't you go back to that?

[stbernhard]

I think 99% of all people diagnosed will go through this phase of disbelieve, anger and rejection. Nobody wants this condition, but the vast majority will learn to take control of their lives with RA and live well. I hope you will find your way. I don't enjoy taking my medication, but I know that without it RA will do irreparable damage to my body. All the best.

[Sjhoney]

I totally get where you’re coming from. I’m kind of at the same place, second round of trying dmards, methotrexate is making me feel rotten but I’m sitting it out ‘til it wears off. It’s a big life change and I think you have to be kind to yourself, make the most of when you feel good, hunker down when you don’t. What was the homeopathic route btw? X

[Pulfs]

I know exactly how you feel have had RA for 24yrs and still have days when I say why me when things get hard to do then I remember when 1st diagnosed where I was hospitalised for 3 wks and in extreme pain and see what I can do now with the help of my drugs,family and good friends. Now I have more good than down days although another shoulder replacement is on the cards then both sides of my body will be complete.....2 new knees....2 hips....and 2 big toe joints..,have to joke about it or you'd go under.

All the best on your RA journey xx

[dbestdeb]

I refused the diagnosis and the meds at first too. As if not accepting it would make it less true. Silly me. Thankfully, my dr insisted I take the prescription with me and make another appointment to review how I was feeling. After a couple of weeks and some research, I decided to follow his advice and 5 years later, I have no damage as yet. No, I never got my old life back, but I have looked for a new normal and found it. Best wishes to you.

[Bx12]

When I was diagnosed with RA many years ago, it was almost a relief, as before nobody really believed that I was for instance having lots of pain in one foot. Yes it is a long term condition, and I think its better to know what you have than go on undiagnosed and in pain. I try and think of the medicines as helping, rather than negative side effects as much as possible. Hope this helps.

[Hidden]

Don't we all Dee. I was diagnosed 31 years ag at 36. Now 67 and also have OA and Osteoporosis among other things.

[nomoreheels]

Apart from a collapsed lung & IVF I'd never had health problems until 2008 when I was diagnosed with RD. Unlike you I'm happy with MTX, 9 years on & I've no further erosions than those found on diagnosis so content taking it. Other DMARDs have failed so even more content with it. I suppose it's all relative, nobody likes taking meds but if we're to stand a chance of controlling the disease (plus OA & osteopenia in my case) it's keep on keeping on taking meds. A good diet also helps, though did eat rather too much on my hols! ☺️

[Matilda_1922]

I take methotrexate and the side effects are so bad for a couple of days following the injections. I need to take cyclizine to help ease the nausea.

To I've asked to come off it but they will not let me.

[flossyjo]

I was diagnosed 30 years ago at 16 years old. I ignored it and didn't look after myself and have suffered a couple dozen surgeries since. I have been on methotrexate for about 20 years now and I tolerate it well. The sooner you can accept it, take care of yourself, learn how to live with it and realize that there is always someone worse off than yourself, then it will be easier to move on. It is an awful disease and I am going Monday to have a pretty awful surgery but if I don't accept it and get on with life the best I can, life will just pass by. Please take care and use the meds that help prevent the joints from being eaten away. I have so much damage and fused joints and metal ware etc and if I could go back 30 years and take care of myself properly those first 5 years, I would do it in a heartbeat. Gentle hugs