RA: I am new to this site, I want to say my heart goes... - NRAS

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Farley profile image
14 Replies

I am new to this site, I want to say my heart goes out to all with RA. 2 years ago when i was told i have RA it seemed my world changed...pills/shots/swollen hands and fingers, sick from Methotrexate...Enbrel .....still taking 8 metho per week plus 1 enbrel per week...

I am doing "ok" and learning each day how to better cope with this..i have learned that my mental state of mind is more powerful than i thought...dealing with the ups and downs, learning how to accomplish task in a different way....feeling blessed when i see someone with worse issues than my self sometimes gives me strength.

Stay strong and hold your self up high.

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Farley profile image
Farley
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14 Replies
juddo39 profile image
juddo39

Welcome to the site, you will get a lot of advice and support on here.

Judith xx

Neverwell profile image
Neverwell

Hello and welcome x

sylvi profile image
sylvi

Welcome to our lovely group and a better group of people you will ever meet.xxxx

lbtabby profile image
lbtabby

Welcome Farley, you have lots of lovely friends here x

welcome to our site x

Caza profile image
Caza

Wise words. Sorry you've had to join us but welcome x

manwithnoname profile image
manwithnoname

Hi there and welcome to the best place to come to if you are feeling a bit down or just for a bit of FUN. I was told that I have RA 3 years ago now and yes it can be hard to cope some days but I just say (well they cant take away my smile)

antibes profile image
antibes

Hello and welcome xx

cazh profile image
cazh

Welcome. Have found this site to be invaluable.

Caroline.

Fidget02 profile image
Fidget02

Welcome, the people on here are amazing and so supportive xx

miss profile image
miss

Welcome to our happy band of people xx

lynn-bel profile image
lynn-bel

I echo your sentiments exactly. I felt the same when diagnosed and have also discovered how much mind over matter works. Just like you I feel blessed when I see people worse off, my neighbour has RA in spades along with Osteoarthritis, Osteoperosis and other conditions!! So I have to feel lucky. It is important to concentrate on what you CAN do and not what you can't and this website is a big help with advice, hints and tips and general support.

Stay positive, don't let the disease control your life - you control the disease.

I am on 10 mtx a week and sometimes feel nausea the day after, ginger helps, in form of tea or just sprinkle it on cereal. Luckily I don't have any nasty side effects except that and feeling dog tired!

Oh, and sunshine helps!!!!

Lynn x

Farley profile image
Farley

Thank you all very much.

Canada3 profile image
Canada3

I too am newly diagosed and as a physiotherapist, recently retired, it is not new except to me on a personal level... I too was devastated but trying to be positive. I am soon to be prescribed Metho and was reading that folic acid can help, has anyone any experience of taking this please? My GP is messing around, as I wAs told I may wait more than 6 weeks for an initial (fast track - haha) appointment and so I paid up oout of my meagre savings and saw someone privately. Now the GP says he cannot prescribe the drugs recommended because I am not under a Rheumo locally, so I am STILL waiting to see someone in the NHS. Meantime the clock ticks and it worries me that I need to be on the DMARDS sooner rather than later to have an effect on the disease process. Maybe I am worrying unnecessarily but the problems seems to go from joint to joint almost daily and if its lower limb, I cannot walk easily, upper limb cannot function with my hands.. seems pretty rapid and vicious to me. Is this anyone elses experience?. Also I had Viral Meningitis in 2009 I do wonder if there is some connection with the damaged immune system? Sorry so many questions, I apologise, just been chewing it over and have no answers I suppose. Thanks for being there all of you.

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