Evening everyone, I'm wondering if any fellow RA sufferers out there who have also had sepsis might be able offer some support please? I've recently had sepsis and I'm really struggling so it would be good if anyone out there might be able to help please?
So I've had RA now for 6-7 yrs, on MtX, abatacept, preds to name a few. My RA has been stable now for a while and I've been reducing preds slowly.
However at the end of April I thought I had a sickness bug, concerned I'd not been able to take preds for a few days I rang my GP, who asked me to go in and see her. When I went in she promptly called me an ambulance and I was admitted for 5 days with sepsis, on IVAntibiotics for 4 days and discharged with oral ABs at the beginning of May.
I've been home recovering since, I tried to go back to work 2 weeks ago which didn't end well as I was totally exhausted. My CRP with my RA is usually around 20-25. When I went into hospital it was 374 and on discharge back in the 20s. 2 weeks after stopping the ABs it was still in 20s. I went to see my rheumy consultant on 24th May. My RA was starting to flare (they gave me a large dose of hydrocortisone in hospital so I think that had it controlled to that point) and I was extremely fatigued. He gave me a depo which settled my joints and I thought I was improving. However, since being back at work I am beyond tired again and my crp has gone back up to 80. It's been checked the last 2 weeks and is being rechecked again this Friday. I don't think it's the RA causing the crp rise as other than the fatigue, my joints still feel fairly ok.
When I spoke with my GP I asked him how long this was going to take to recover and he really wasn't sure and he didn't seem to know why my crp is going up again. He's obviously told me to go straight in if there's any sign of any infection, fever etc. He's also signed me off work again. Other than that he didn't offer much information.
I'm getting soooo frustrated and thinking I'm never going to get over this. Patience was never my strong point! Just before I went into hospital I accepted a new job which is more demanding and more hours than I currently work. As my RA has been controlled I thought I could manage this. However I'm now beginning to doubt my ability to take this new job on. It's an internal transfer so I've probably got til the end of next week at the latest to change my mind and stay put. I don't think by then I'll know enough to know how things may be in a few weeks/months. I really want the new job and don't particularly want to stay in my current job.
Sorry, that was very long, but what I wanted to know is from anyone out there who has had a similar experience to this and how long your recovery took, is this normal and did you recover fully to how you were before the sepsis? Did your crp keep going up or anyone any ideas on this please?
Thanks so much everyone