So I've fought and fought to get treatment after failing on four dmards. I complained - I saw the consultant - he promised something would be done.
The result is nothing is happening I've deteriorated in terms of pain and general unwellness - the fatigue and flu like symptoms are now overwhelming but the hospital say they will only treat when they see erosion and they can't see it. They accept I have RA, that inflammation has been seen and I have fluid on my knees but it isn't enough to warrant any treatment.
I returned to work and also went on an induction day for the police on Monday. By Monday evening I could barely move. Tonight my GP has put me on morphine patches. This is the end of my volunteer role. I have to prove I have a proper treatment plan in place and my health will improve. I can't do this thanks to the Hospital who say I need to go away and put up with it until I deteriorate enough to qualify for treatment but by that time I will have already lost my job. I don't know what to do anymore.
I've had to accept I'm not well enough to do my volunteer job or my college course and really I'm not well enough to do my day job but it was my volunteer job I was desperate to keep. The frustration is all of this is because my hospital believes the only element of RA that warrants intervention is erosion. Surely this can't be right?