Genetic Haemochromatosis

[Bessieboo1]

I was diagnosed with genetic Haemochromatosis yesterday, along with already diagnosed inflammatory arthritis, hyper mobility, degenerative disc disease etc. Does anyone else have Haemochromatosis and inflammatory arthritis and has it affected there treatment plan and condition? Xx🐾

[charisma]

Hi Bessieboo1,

I don’t but have a friend who copes with it. She has regular taking away a pint of blood to decrease iron levels.

And she uses CBD oil for pain.

[Bessieboo1 in reply to charisma]

My brother was diagnosed about 1 month ago and he has to give about 500mls of blood a week to get his ferritin levels down. My ferritin levels are ok but have lots of symptoms. Not sure now what is RA and what is haemacromatosis 😮

[Hidden]

I also have a friend with it. She's quite naughty at eating and drinking stuff she shouldn't. She's s heavy wine drinker too.

Have they told you about not drinking orange juice and certain foods?

Friends also gets blood taken.

[Bessieboo1 in reply to Hidden]

My GP has referred me to haematology so not seen anyone as yet. My breakfast cereal is my favourite meal of the day so would be gutted not to be able to eat it😟.

[charisma]

Found this a few minutes ago:

heal-yourself.com.au/Diseas...

Might be a snippet there to encourage although it seems an old article that may be outdated.

[Bessieboo1 in reply to charisma]

Thanks for that, extremely depressing at the beginning but ended well!!