Moaning (again!)

[Elmo333]

Moan alert... I’ve very luckily had a number of good months until the last few weeks when it’s been flaring up all over the place joint by joint. As one stops another starts. Even my throat glands swell and hurt when I swallow when I’m not in a good RA phase-anyone else get that? (It’s nothing scary, it happens occasionally). I can no longer tolerate the mtx dose so I’m having to reduce it a bit due to nausea. Hydoxychloroquine and sulphasalazine give me awful heart palpitations so not sure of next step. My bloods are not good but I doubt I would be eligible for biologics because I do not have very erosive disease (I’m not sure id want to take them anyway). The big dietary changes do not appeal to me particularly as I had about 5 months (not in bloods but pain wise) when eating normally. Grumpy, of Kent!

[JanetMaryBishop]

Hi there. If the Methotrexate is causing unbearable nausea they may consider you for self-injecting instead. They did for me and it is much better than the tablets. I can’t say I liked doing it the first couple of times but now it is okay and much more pleasant than the tabs, if you can say any of it is pleasant! As for Sulphasalazine, I think it is common to have problems with this one, but they told me to stop it and there were plenty more drugs they could try! Are you able to phone your Rheumatology Nurse? I find mine is good and I don’t have to wait for my appointment if I have a problem - she will speak to the consultant on my behalf and get things sorted. Try that. All best

[Elmo333 in reply to JanetMaryBishop]

Thank you. I already self inject and it has helped but not solved the nausea issue. I have emailed the nurse and will be seeing her in a few weeks. I’ve not met my new nurse before and she is brand new to rheumatology but that might not be a bad thing maybe! Hopefully we will find the next steps. Thank you x

[JanetMaryBishop in reply to Elmo333]

Ah! It was the sulphasalazine that made me nauseous so maybe that’s what needs changing?! I stopped it with the Nurse’s full agreement, and now on just 2 drugs I feel very much better. A taste sometimes depending on what I eat but not nausea. Best of luck J