Question..: I have noticed lately that I always seem to... - NRAS

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mickie73 profile image
34 Replies

I have noticed lately that I always seem to have a blocked nose.. often have to clear my nose. Does anyone else get this or is it just me? Thanks xx

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mickie73 profile image
mickie73
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34 Replies
Jlefkovenj profile image
Jlefkovenj

Do you mean a stuffy nose?

mickie73 profile image
mickie73 in reply to Jlefkovenj

Yes.. sorry.. I knew what I meant..just didn't put it across well.

Jlefkovenj profile image
Jlefkovenj in reply to mickie73

You’ve never had a stuffy nose before? Could be a cold or allergies.

mickie73 profile image
mickie73 in reply to Jlefkovenj

Yes I have had lots of colds b4..im waiting to see a rheumy and I have ra, just wondering if anyone gets stuffy nose alot.

Jlefkovenj profile image
Jlefkovenj in reply to mickie73

All the time

mickie73 profile image
mickie73 in reply to Jlefkovenj

Is it part of ra symptoms?

Jlefkovenj profile image
Jlefkovenj in reply to mickie73

No. What is ra? Rheumatoid Arthritis?

mickie73 profile image
mickie73 in reply to Jlefkovenj

Yes..

medway-lady profile image
medway-lady

Hate to sound odd just common old yellow infection or clear with bubbles

mickie73 profile image
mickie73 in reply to medway-lady

I have ra n seeing a rheumy soon..i seem to always have a stuffy nose n was wondering if any1 else does.

Kai-- profile image
Kai--

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Yes, used to — continuously/ chronically at various times, mickie73. 😳

Found Neti Pot ( m.wikihow.com/Use-a-Neti-Pot ) to be godsend. 👼 🙏

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Used routinely with warm distilled salt water was a game changer in clearing sinuses 👃💧:

m.youtube.com/watch?v=EDSlU...

.

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Took time, but eventually cleared long-time stuffed nose & chronic/ continual sinus issues. 👍👍

Might be of use in meantime, mickie73, till you can ferret out what might be at the source of problem? 🤔

Best wishes in getting at root & finding what works well for you. 😌 🙏 🍀 🌺 🌞

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[Oh . . . also suspect dairy (milk 🥛 , cheese 🧀 , ice cream 🍨 🍦, etc..) contributed to life-long nasal issues (for me). Can’t ‘prove’ it; merely ‘deductive reasoning’/ inference from ‘trial & error’ experience. 😖🔨 ]

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mickie73 profile image
mickie73 in reply to Kai--

Thank you for all information..will look into it.

lotsoissues profile image
lotsoissues in reply to Kai--

If immunocompromised I would be careful of the neti pot. I've heard of cases where bacteria from water entered a person from use of a neti pot and led to a serious hospital stay.

Kai-- profile image
Kai-- in reply to lotsoissues

.

Agreed, appropriate care/ vigilance is needed, lotsoissues. 👍👍

Exercising common, routine hygiene precautions (such as thoroughly cleaning neti pot, using distilled water, saline solution, etc. as instructions explain) minimise/ eliminate the probability of bacterial infection — even for the immunocompromised? 🤔

Following directions (& using common sense) would seem to go a way towards avoiding bacterial infections requiring ‘a serious hospital stay’? 🤔

• How often have you heard of these neti pot incidents, lotsoissues?

• Did the individuals say if they followed the hygiene, water, saline, etc. directions?

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😌 🙏 🍀 🌺 🌞

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Kai-- profile image
Kai-- in reply to Kai--

.

Aside:

We all ‘hear’ horror stories 👻 💀 . . .

. . . people get hit by buses 🚌 because they left the house 🏡 . . .

. . . people die in plane crash because they flew ✈️ . . .

.

Yet, we don’t seem(?) to hear much about people not looking both ways 👀 before crossing the road 🛣 . . .

or the infinitesimal probability 📉 of dying by plane crash? 🤔

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• Wondering how common ‘hospitalisation 🏥 by neti pot’ is for the immunocompromised 🤧 ? (What’s ‘statistical probability’ 📊 ?)

• Also wondering, how common is it for the immunocompromised to not (routinely, scrupulously?) practice proper hygiene/ safety precautions given known vulnerabilities? 🤔

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On a ‘contemplative’ note:

"Una vida con miedo es como la vida medias."

m.youtube.com/watch?v=46keE...

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("A life lived in fear is a life half-lived." 😳 🤔 )

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lotsoissues profile image
lotsoissues in reply to Kai--

I know that bacteria live in water and I just don’t take chances because being immunocompromised I have had infections which have led to abbesses and I’ve had celllulitis too as a result. I’m just making a suggestion to be aware is all.

Kai-- profile image
Kai-- in reply to lotsoissues

.

Thank you kindly, lotsoissues. 🙏 😌 Appreciate your point. 😌 🙏 Understood. Agreed. 👍👍 (In light of this, hope anyone who’s immunocompromised would take great care to scrupulously follow safe hygiene practices if they still chose to use a Neti Pot. 👍👍 ) Think there’s nasal sprays(?) & other medic-approved alternatives for immunocompromised? 🤔 If your aware of any safe alternatives, lotsoissues (or anyone else), might be useful to note & share here. 👍👍 Thank you again, lotsoissues. ☺️ Much appreciated. 😌 🙏

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Aside: Oh . . . just noticed you’re over at Lupus too! 👋 👍 Merely a thought (only if this type of thing interests you), have you heard of Dr. Brooke Goldner ( healthunlocked.com/cure-art... )? (If not interested, kindly by-pass. 🙏😌 ) If interested, you might wish to connect with MarshaM ? 🤔 (Merely a thought. 😌 ) Wishing you the best, lotsoissues! 😌 🙏 🍀 🌺 🌞

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wishbone profile image
wishbone

I regularly have a stuffy nose, which is worst in the evening with the occasional blocked nostril. I'm on hydroxychloroquine and did hear that was the cause.

mickie73 profile image
mickie73 in reply to wishbone

Thanks.. just wondering about it..

wishbone profile image
wishbone in reply to mickie73

I presume that you don't take hydroxy?

mickie73 profile image
mickie73 in reply to wishbone

No not yet..my first appointment for March 12th with the rheumatologist.

wishbone profile image
wishbone in reply to mickie73

That seems to rule out hydroxy being the cause of yours then! :-)

Gotta stuffy nose right now. Funny thing is it's usually my right nostril that gets blocked.

Izzyowl profile image
Izzyowl

My Rheumatologist was concerned/interested about my chronic stuffy nose. I had no idea it was part of my inflammatory condition but it was, and it has stopped being a problem since I started Methotrexate. Please make sure you tell your Rheumatologist about it.

mickie73 profile image
mickie73

Oh thanx..i will tell them.

popsmith1874 profile image
popsmith1874

Yes I get them all the time, probably just another down side to having RA

Matilda_1922 profile image
Matilda_1922

I believe this is a side effect to hydroxy I think.

I have had this problem for many years before RA diagnosis and starting hydroxy

Kell46 profile image
Kell46

Not alone I also have a stuffy nose! No idea why !

helenlw7 profile image
helenlw7

I do. Feels like it’s to get air through. I do a lot of mouth breathing. I don’t think it’s a side effect of the RA in my case because I think it’s only been like this for the last few years and it’s been 14 years since my RA diagnosis. I have developed asthma in the last five years and am allergic to quite a few things.

wishbone profile image
wishbone in reply to helenlw7

Hmm, I thought it might be something to do with my breathing before being told it was due to taking hydroxy. What made me think it could be air-circulation is because I have RA related lung disease. I breath through my nose most of the time but my breathing is bound to be affected by COPD...possibly shallower than normal. Can't quite recall when my stuffiness started, but could well have been around the same time, or possibly before, I was diagnosed with COPD. Trouble is I also started taking hydroxy around about then. Plus I had to stop taking RA meds at the time and my RA hasn't been well controlled since, so it could be due to that.

Jeepers, seems like there's so many variables involved..the mind boggles???.......

V:-)

Rahelp profile image
Rahelp

I have had a crusty blocked nose since beg jan. I have used sterimar to help clear it but its going worse. I have asthma so its frightening when you cant breath. I am on a low does mtx have been for years but its still happening. I just thought it was part of the flu going around at the moment.will mention it to my rheumy when i next see her. Hope your goes away soon. Ps did wonder if it was due to the central heating drying the air up.

wishbone profile image
wishbone in reply to Rahelp

It's so difficult to pin down the exact cause, see my reply to helenlw, it could even be a combination of things I suppose. Did your blocked nose start around the same time as our asthma?

Rahelp profile image
Rahelp in reply to wishbone

No had asthma dor 20 years or so. Blocked nose started jan this year. Not had anything like it before though.

medway-lady profile image
medway-lady

I have a condition called Cylindrical Bronchectastasis its also Auto Immune as is RA in my case. Look it up for information. I did get a blocked nose but just one side but lots of chest infections too.

Mhairi54 profile image
Mhairi54

Every now and again I get Rhinitis, where my nose can be blocked for weeks on end! Have had a get a steroid nasal spray from my GP which was the only thing that would sort it out.

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