Hi there, hoping to get to know you all.
In January 2012 I developed pain in a particular point of my right shoulder. After 3 weeks, I saw a GP who said, with my family history and where in the shoulder the pain was, she suspected RA.
She referred me to Rheumatology who in June 2012 confirmed after other joints were affected and after various xrays and ultrasounds that I have a low grade inflammatory arthritis- not wanting to commit to RA as my bloods were all normal. They started me on hydroxychloriquine. My symptoms improved immensely.
3 years ago the consultant saw me (usually reviewed by registrars) and he wanted to take me off my meds but then changed his mind when I mentioned the crunching in my shoulders to do an xray first. I had the xray but whenever I’ve asked what is going on with it, they said they can’t find the xray (which are all held electronically so I’ve felt fobbed off),
In November I was reviewed by the consultant again who took me off my meds and discharged me as well, despite my concerns. Since a throat virus in early January, I have been experiencing a flare affecting joints that I’ve not had pain in since 2012. I have a GP appointment (with a final year medical student) next Friday.
Do you think I will get re-referred to rheumatology? Is it reasonable to ask to go on someone elses list? (My trust has gone with my previous consultant).
Could the GP restart the hydroxychloriquine without referring me? Or might they need to wait until instructed by the consultant?
Naproxen has eased things a little (i have restarted the supply i had when I was discharged without managing to check this was okay with the gp (they never responded to my email) but might they give me something stronger at the moment?
I’m so annoyed with myself that I didn’t put my parts on more when I was discharged. I was just gobsmacked that a consultant would say “aches and pains are normal for someone of your age”. I struggle to get up the stairssome nights, I’m not convinced all 44 year olds do.