I'm really struggling at the moment (think I posted about how wonderful I was feeling etc. & that lasted approximately 1 day). I can hardly walk, lots of pain, can't do much at all & now I feel fluey & have a raised temperature.
So far the GPs at the local practice have been remarkably useless & brusque to the point of rudeness so I've avoided the place since I was diagnosed. But have now made an appt. for next week, partly to ask for a referral to a private Rheumy, but also because they need to see what's going on.
What I would like to know is what role other peoples' GPs play. I get the impression that some will relay updates & questions to the Rheumy & that they at least take an interest in whether DMARDs etc. are working. Personally, having done the same Amateur Rheumatology course as loads of other people here, I think I need to up my dose of MTX; I don't want to, but objectively that's what I think. Can I expect the GP to discuss that with me?
Perhaps I'll get lucky & the GP will be helpful, I'm not going to turn up expecting the worst. But I've had such bad experiences e.g. a really angry response the last time I asked about seeing a private Rheumy that I've got no blue print for what I can reasonably expect.
Hope you are all doing something a bit more exciting than I obviously am this Saturday evening!