Visit to Rhuematology

[vivgibbs]

Have just been to see my consultant and have been told there is a couple of new meds been NICE approved in the last 4 months as I have had a lot of problems with Dmards biologics etc nothing but steroids and paracetamol has helped damped down the pain with the occasional depomedrone thrown in. He is going to send me the information about them. Has anyone else heard about this ?? There have been trials in usa.

[Cherub198889]

Are you talking about sarilumab? It has been approved in both Canada & USA in 2017

rheumnow.com/content/kevzar...

[sylvi]

I haven't and i hope they are something you will be able to stand.xxxx

[helixhelix]

There's a new type of biologic that has been developed, called JAK inhibitors. This targets a different part of the immune system than the other ones. Several of these have now been approved for use for us. Xelianz (Tofacitinib) and Baricitinib have been prescribed to people on this forum already. It could well the one of these. The feedback about them has been good.

There are also new versions of the existing biologics, like the one Cherub mentions that targets IL-6.

Happily for us new drugs are appearing all the time - just need to find one that works for everyone with no side effects!

[vivgibbs in reply to helixhelix]

That's the group he was taking about thanks now I can research it and hope I can take it with fewer side effects

[wishbone]

I'm waiting for a miracle med that will control my RA without suppressing my immune system. I'm not holding my breath though!....

In the meantime, I hurt........a lot!!

[Gnarli in reply to wishbone]

Hugs x

[premierscfc]

I hope whichever new Dmard you are prescribed is successfully in getting your disease under control.

I'm very interested in whatever is available as I'm in the same situation as you and I've got my appt tomorrow.

[vivgibbs in reply to premierscfc]

helixhelix replied to me and I am going to see what happens

[BlightyFiveStar]

The head rheumy nurse at my hospital told me that in some trials elsewhere they treated early stage RA patients aggressively with JAKS for first 18 months after diagnosis and found they were then CLEAR of RA symptoms and disease- but no funding for this approach in UK - even though would save money in long run. Not sure what country study was in. Unfortunately I don’t qualify for JAKS. Good luck to those who do as they sound promising.

[vivgibbs in reply to BlightyFiveStar]

Thanks for that gonna wait and see what rheumy man comes up with am a bit fed up with steroids skin tears bruising and weight loss ☹

[Kim-NRAS NRAS]

Hi there

You can read more about JAK inhibitors on the NRAS website here: nras.org.uk/jak-inhibitors

Best wishes

Kim, NRAS

[vivgibbs in reply to Kim-NRAS]

Already have. I told the rhuemy man I am willing to try anything that is going to help me 🙂

[Kim-NRAS NRAS in reply to vivgibbs]

Fingers crossed they work for you good luck!