Hi all, I think the heading says it all, the result of my visit to the consultant who basically seized on the fact that I lost my mother 3 months ago & diagnosed a further condition..FIbromyalgia! Convenient when I have never had this before, is this the “ get out clause” to effectively flatten any hopes of me or come to that a lot of other over sixties getting biologics either now or in the future? Speaking to my cousin, who has inside knowledge regarding the medical system, she gave me an instance whereby a long time friend was literally talked out of asking if she possibly needed a hip replacement due to the chronic pain she was in, by a consultant telling her there was “nothing wrong with her hips, it was ( you guessed it) fibromyalgia”. Upon seeking a second opinion & having an X-ray, she was told a completely different story, she goes in for her first hip operation on the 12th December after being told BOTH her hips needed replacing! So, me thinks is Fibromyalgia is being used as a “gigantic fobb off” for a wide spectrum of medical conditions on a grand mass scale by a cash strapped NHS?
For myself, after being devastated by being told that there is nothing further to be done to alleviate the pain in my hands, feet, neck, shoulders etc etc except amytryptaline this is not acceptable. I was told my last blood test on 3rd October showed low inflammatory markers, but that was only 4weeks after a large steroid injection which has worn off now, to which the consultant said “ well if it’s worn off after 4_5 weeks then it wasn’t inflammation in the first place but fibromyalgia”. Felt I wasn’t getting anywhere, no wonder we are called “RA Warriors” when we have to literally battle through quicksand, I now have to consider the private second opinion route...I would like to here from anyone else who has had a similar experience.... thank you all x