Any one have experiences with the JAK medicine Baracitnib ?

[Vanwife]

I’ve been on Benepali for 2.5yrs and after seeing my consultant I am being moved onto Baracitnib, I was hoping someone here might have some advice and experience with this JAK ?

( just a bit of background info... I have had RA for 20yrs, I have fused ankles, deformed joints, worn hips and knees, and been on countless medications, including a few biologics)

Thank you in advance everyone.

[Green230461]

Started this four months ago! Knee and ankles are no longer swollen or painful. I feel happier about my RA and have not had any side effects. Before baricitinib I was on many drugs and had a shoulder replacement because of RA and I was in a bad way. So if it is offered I would go ahead it also leaves the body after three days so if you have issues they can be sorted quickly. Good luck. 🍀

[Vanwife in reply to Green230461]

Thank you for your reply 😊 this was the first choice of action as am awaiting my second covid vaccine which I would need before starting down the different route of infusions, and my consultant wants to try something quickly as we need to reduce the pain and inflammation.

I hope it continues to work very well for you and I wish you all the best ❤️

[Green230461 in reply to Vanwife]

Happy to discuss my experiences with you. I had already been on leflunomide sulfasalazine prednisone methotrexate and various other combinations I was on humira for ten years but it stopped working for me. That was why my rheumatoid consultant suggested it. At the time I would have said yes to anything. I am just pleased I did. I hope all goes well for you. Let me know if you need any more info🌞

[Vanwife in reply to Green230461]

Thank you 😊

[Hidden]

I started this in December and things improved dramatically ( did a post not long ago) had to come off it 4 weeks ago due to other problems and boy do I know about it. Restarted yesterday 🤞🏻I get the same results

[Vanwife in reply to Hidden]

Thank you for sharing with me I really appreciate it 😊 long it may continue working for you ( and me when it starts 😊) 💜

[Hidden in reply to Vanwife]

Hope it works x

[Stayloose]

My husband has found Baricitinib excellent. Just make sure GP monitors cholesterol. Hospital didn't mention it, he had to ask GP to test it. It's gone up quite a bit, but might not effect you.. Hope it suits you too.

[Vanwife in reply to Stayloose]

Thank you 😊 I will mention it to GP as cholesterol is slightly high because of my love for cheese 😆, wouldn’t wish RA on anyone, hope it continues to work for your hubs for many many years to come 💕

[Hidden in reply to Stayloose]

I’ve been taking flaxseed in my breakfast and flaxseed capsules . I’ve always had cholesterol around 6 or slightly above. I started the flaxseed same time as Baricitinib I’m now 5.1 only thing I’ve done different.

[Stayloose in reply to Hidden]

Very good!

[Vanwife in reply to Hidden]

That is excellent advice ! Thank you 😊

[sensibleshoes]

Hi I’ve just started on baracitnib and already seeing some benefits- hands and wrist less swollen and can walk without pain for the first time in a while. Was a bit concerned to get a call asking if I’d had the shingles vaccine (I haven’t) and also a letter today from surgery advising me to stay home and see no one fir the next 12 weeks. Obviously powerful meds but working for me 🤞

[Vanwife in reply to sensibleshoes]

Thank you so much 😊 that is so very helpful to know how quickly the benefits were seen. Long may it continue for you 💛 stay safe x