Next round: Hi everyone, I hope you’re all doing as... - NRAS

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Eiram50
Eiram50
12 Replies

Hi everyone, I hope you’re all doing as well as can be.

I picked up my Leflunomide today and I’m thinking of starting it tomorrow- albeit, with some trepidation.

My question is, how is it best taken, on its own or can I take it the same day as my methotrexate ( due tomorrow )?

Any advice will be greatly appreciated .

Marie

12 Replies
oldestnewest
oldtimer

What were you advised to do?

Personally I would start it on a different day to the methotrexate as the side effects from the methotrexate might overwhelm how you feel on the leflunomide.

But have a look on the NRAS site for advice about leflunomide and perhaps here too? arthritisresearchuk.org/art...

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Eiram50
Eiram50
in reply to oldtimer

Strangely, I wasn’t given any advice and even stranger, for me, didn’t think to ask ?!

I’ve taken the enbrel today so maybe methotrexate tomorrow and leflunomide the day after?

Still feels a bit of an assault !!

Thank you for your response and advice .

Marie

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helixhelix

I don't take it, so can't advise - just wanted to wish you well and fingers crossed that this is the magic combination for you.

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Eiram50
Eiram50
in reply to helixhelix

Thank you very much HH

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nomoreheels

I used to take LEF in the evenings. I've always injected my MTX in the mornings. That's just how it worked out. I collected my first LEF script after I'd taken my morning meds so took it with my evening ones, no other reason. I can't honestly remember if I started it the same day as I inject but me being me would have just done it anyway as I rarely react negatively to a new med. So I guess that's my reply, if you usually react to a new med don't take it the same day as your MTX.

I really hope LEF helps you Marie. I had to stop it only recently though I gave it a good go. x

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Eiram50
Eiram50
in reply to nomoreheels

Thanks NMH, you and me both ! As much as I’m nit happy at yet another heavy hitting med, I’ll do anything suggested to slow thus down.

I took enbrel today so thought I’d take Mtx tomorrow and the LEF the next day. Not that I’d expect to react badly but just easier to get my head around.

I’ve just booked another trip to Budapest for the summer - we all fell in love with the place! Cheers me up in the Dave of so many tablets, injections, bloods......

Hope you are doing ok?

Marie

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nomoreheels
nomoreheels
in reply to Eiram50

I think that's a plan, a few days won't hurt & by next Monday you'll feel taking them the same day as MTX, that should give your body a little time to adjust. Are you starting on 10mg or 20?

I'm really pleased you enjoyed Budapest. It was one of my mum in law's favourite places. We al need something to look forward to, will you, your sisters & daughters all go together again next time?

I'm not doing too badly thanks for asking. x

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Eiram50
Eiram50
in reply to nomoreheels

Thats good to hear. It’s nice to have a more settled period- if even for a little while.

Yes, my sisters , nieces and nephew as well as my girls, are going. There’s a big musical festival that my 14 year old wants to go too fir the day- makes me feel old!

You’re right, if the meds feel fine this week, I’ll take them together next week.

Marie

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nomoreheels
nomoreheels
in reply to Eiram50

You'll be able to hire your own plane, do it in comfort! You'll all have a brill time I'm sure, even if they do run you ragged!

All the best for next week.

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Eiram50
Eiram50
in reply to nomoreheels

Haha, that would be a treat!

Thank you. Enjoy the rest of your evening.

Marie

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nomoreheels
nomoreheels
in reply to Eiram50

You too. Just waiting for Ball & Boe to come on. Michael Ball is my secret crush but shush, don't tell anyone. 🙊

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Eiram50
Eiram50
in reply to nomoreheels

Secrets safe with me!

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