2nd round Rituximab : So tomorrow is 2nd round of... - NRAS

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2nd round Rituximab

Tessthomy profile image
7 Replies

So tomorrow is 2nd round of Rituximab. Nothing un toward happened after the first I am pleased to say. So hopefully same again. Let’s hope it kicks in soon after tomorrow!!

Q. Does anyone know if I will be given the same as in steroid intravenously and Piriton again?

The dr gave me a rescue course of prednisone after last infusion until the Rituximab starts working (up to 16 weeks), so I won’t take any in the morning if I know I’m getting a big dose in my arm, as I don’t want to be on the ceiling with a steroid high too much!! Any advice ? TTx

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Tessthomy profile image
Tessthomy
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Jillyanne profile image
Jillyanne

They do give you steroid and piriton again , I also take steroids and don’t take my tablet in the morning of the infusion

Good luck 😉

Tessthomy profile image
Tessthomy in reply to Jillyanne

Thank you!

Jackie1947 profile image
Jackie1947

Yes the same procedure will be repeated. As for kicking in soon be prepared as it can take up to 3 months but everyone is different. Best treatment I've ever had.

Tessthomy profile image
Tessthomy in reply to Jackie1947

Yes I’m prepared for a wait!!

Tessthomy profile image
Tessthomy

It’s funny isn’t it,how they don’t tell you stuff like this .. a small detail, maybe, a lack of communication..but stuff so important to us patients who at the end of the day are ignorant to these medical facts but have to find out for ourselves, and/or worry ourselves silly, and/or suffer the consequences .. either that or maybe it doesn’t matter and not a worry to anyone except me!! But if they communicated that it would be good!! Thank God for sites like this one! Will keep you all informed ! TTx

Tessthomy profile image
Tessthomy

2nd round done and dusted. A bit more tired this time as still a long day but probably an hour or so shorter. All good.. will be taking it easy for today so at least the sun is shining🌝🌝🌝

Now for the wait to see if and when it kicks in! 🤞🤞🤞. For those who are dreading or feeling nervous for their first set of infusions , there really isn’t anything to worry about.😊TTx

3LittleBirds2 profile image
3LittleBirds2

Hi Tess...how are you feeling now? Hoo you’ve some benefit? 😊🤗 x

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