Everyone knows the saga I've had and how I've had no treatment for my RA since last February.
I've been struggling with severe fatigue and flu like symptoms for about a year. The hospital aren't interested as only erosion counts as far as they are concerned.
I've been feeling particularly ill over the last week. The pain in my knees and elbows is constant and I feel sick most of the time. The GP insisted on seeing me again yesterday. I felt so guilty having only been there the week before. Turns out I have another infection. I am running a temp so back on antibiotics and antivirals. GP is convinced this is because I am so run down trying to cope with a disease no one is treating.
I was offered a place on a Masters degree last week that started today. I'm supposed to be there instead I'm at home in bed. GP said no way could I go and no way can I work this week. I know in my heart of hearts this is right as I can barely stand up.
The hospital have now chosen to ignore me. So is this it then? Unable or work or study or get on with my life because I'm deemed not worth treating because I failed on the dmards and don't qualify for anything else? I have fought for a year, the GP tells me to keep on fighting but I'm exhausted. I am about to lose everything at a time when opportunities had finally opened up for me. I'm struggling to carry on the fight or quite frankly carry on at all