Well what a day i had yesterday. First off rheumy appt, it appears i am a lot worse than i thought i was. He was the first to say your bloods are normal are they always like this and i said yes. Nobody seemed to believe me when i said i was in pain despite the bloods showing nothing. He is going to up the Mtx to injection at 25mg. He has mentioned biologics and we said i was on them but got taken off due to chest infection. He has told me to go back in two weeks after i have got this chest infection sorted. Then it was hand therapy in the afternoon and she has given me some exercises to do and is ordering me some gloves. Then it was on to the drs and he has given me another seven days of amoxcillion so here's hoping it works. At least being in my own bed i am sleeping better. I hope your all as well as you can be and hugs to you all.xxxxx
What a unusual day i had yesterday....: Well what a day... - NRAS
What a unusual day i had yesterday....
Glad you're getting sorted! Beautiful photo!!
Hope you feel better soon. Take care.x
Take it easy and rest , let those antibiotics work ! Photo is beautiful xx
I hope the antibiotics sort you out so you can started in the injections. Seems you're another who's bloods don't tell the whole story. Take care. x
They never have Nomoreheels and i wish the medics would listen to me. I don't bother anymore i just turn up and then leave because i feel a lot of the time it is a waste of time. Except yesterday when someone actually listened to me.xxxx
Sometimes a new pair of eyes help Sylvi. I think so many rely on bloods & don't look at us holistically, or listen, which is annoying when bloods don't tell the whole story. They don't just rely on bloods when we're diagnosed? Anyhow, hopefully things will start to improve once you start injections at your new dose. x
Thank you darling.xxxx
Thank you all very much for you kind words.xxx
I hope this new Dr helps get your pain relief sort Sylvi , that's the part of this disease that pulls you down , take care love Dawn 🌺🌺🌺
You know Sylvi, we hear this all the time on the helpline. The person is in terrible pain and has swelling and stiffness but because the "bloods" are OK they get told they are fine. When will the HCPs listen to what the patient is telling them instead of treating them as a set of results on a piece of paper!
This dr was so different darling and i was getting where i stopped listening to them when they say your bloods are fine. So hence i have got worse which i knew anyway.xxx
Hidden I'm curious. Is there an 'official' reason for this? Is it to make clinical decisions about drug treatment more suitable for audit purposes? Because, otherwise, I don't understand.
This is coming to mind for me because I read an "in press" paper that argued that blood work can be confounded the other way around, so to speak. Some people with RA are advanced to anti-TNF agents because of their blood work but fail to respond. More extensive investigations seem to suggest that in some cases their blood work markers were attributable more to co-morbidities and associated metabolic perturbations than the RA. (I'll edit in the paper when I locate it.)
It was either the same paper or a different in-press one that was arguing that higher-imaging MRI is more expensive than relying on blood work but gave a more accurate clinical picture to some extent and might be cheaper than trying out an expensive drug that failed.
Hi ITYFIALMCTT,
I have never seen an official reason. Having a science background myself, I think it is more to do with basing one's decisions on tangible facts and the way we have all been trained is to look at the "facts", eg blood test results and treat accordingly.
After working here for some years I have come to realise that things are never black and white with these auto-immune conditions and there are so many other factors that need to be taken into account.
The human body is so complex. Blood saying one thing, body another. But at the end of the day, a person knows their body better than anyone and they should be listened to.
You have been having a rough trot lately Sylvi. Hope you are on the mend soon
Take care dear Sylvi and hope the infection jiggers off soon. xxxx
I hope you're feeling better soon.
My rheumatologist examines each of my joints in my hands and feet and just seems to know exactly what is going on. I don't know how she does it, but she knows. My blood tests are normal also.
I've had good results!! just what i needed:)
