So my struggle isn't easing off at all. Having had to chase up the hospital in order to get a follow up appointment for my knee surgery and have my stitches taken out, I was greeted yesterday with nothing but complete disinterest. My surgeon didn't even ask me how my knee has been he couldn't get me out of the chair quick enough. He spent all of 60 seconds talking at me and said that it was unfortunate that at 28 I had the knees of a 60 year old but that there was nothing he could do and that I would need a knee replacement at some point and thrust my discharge papers at me. The nurse then had to dig into my skin to remove the stitches that had been left in too long and had sunk into my flesh.
At any other time I might have been able to brush this off but I just want to give up now. I broke down on the train to work this morning. I just want to sleep and for it all to be over.
Written by
Suki1088
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I'm really sorry that your feeling low. It's awful when we're not listened to brushed aside. If only these people would stop & think the affect their actions have on us. Whenever I feel like this I take time out & do things that please me & then return to fight another day. You do matter 🤗 Big hugs
Unfortunately health professionals have bad days as well. Especially if they feel a failure and as hopeless as you do...they often put on an uncaring manner so that you can't see that they feel upset you have a rare deal in life and that they can't make it better. They go into medicine or nursing in order to make people better and they, too, feel awful when they can't do it.
So how you were feeling was mirrored by them.
Please rant as much as possible here. We have all been at the bottom of the trough in the ups and downs of this affliction. We understand without judging or feeling that we have to mend you.
It seems so unfair that the one person who can give words of advice seems disinterested & rushing appointments. Just when your needed some input you're faced with a Surgeon of the worst kind, they seem to be in two camps, the ones who care & the ones who are matter of fact & have lost their compassion & the ability to see the needs of the patient in front of them. I'm sorry.
How do you feel about going to see your GP, see what options there are for you? There's no disgrace in asking for help when you really need it. Whether it's medicinal or talking therapy, just to help you over this bump in the road. Or maybe call the NRAS helpline 0800 298 7650, I'm sure they'll be able to help.
I'm so sorry that you feel low. I know that feeling so well. Is there someone you can talk to? A close friend or partner. I find I always feel better if I visit a friend for coffee. The temptation, when feeling low, is to hide yourself away. Don't do that, seek out company.
If you have the energy, how about making an appointment with your GP. Also, if your quality of life is seriously compromised by damaged knees, tell your doc that. Also explain that it is affecting your mental health.
Look after yourself, and keep talking to folks on here, and out there.
sorry to hear that you are feeling so low. Consultants can be so thoughtless sometimes. They are professionals and should remain so at all times with their patients. Hope you feel better soon.
Oh suki - my poor love........ u are having the worst day ..... can I ask why you had stitches in? Also should you really be working if you are feeling this low ( mentally and physically )
Keep sharing my love - do you have ra? And what meds r u on? Sorry if you said all this before ... I just got your last couple posts xxx
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Feeling lost
Depression/ Simponi(golumab)
