I had a brilliant appointment this morning and f2f too .. canโt beat a f2f.
I presented my scroll ๐ of ailments . Confirmation of fibromyalgia really explained things well. Some symptoms need further exploration especially my nerves in my feet and other things so will see a neurologist. Physio booked for fibromyalgia symptoms also hand therapy due to tendon thickening. My heat problem needs investigation and I need hormones testing.. never been done even though Iโm on hrt.
Not impressed with the gp ( I try avoid this gp but sometimes no option)he is going to write to her and explain that not everything comes under the umbrella of RA.. he made me chuckle . He said some gps need their hands held .
So my advice is please keep a diary no matter if you think your symptoms are RA it might not be . I presumed as did my gp.
Sounds like a really good appointment with some big steps forward. Now you can start treating those nasty fibro niggles and start to feel a bit better ๐ฅณ Physio will be good. The neurologist might also give you some fibro tips if you ask.
Too right about the GP. Happens so often.
Last but not least, welcome to the RA and Fibro club! Membership badge in the post ๐ x
That is good to hear in respect of now you have some answers and as you say not everything can be attributed to RD and can feel like an excuse at times. Fingers crossed now that you have a way forward and things begin to improve. Take care xx
I know it's just a label but it's important, especially when you know something is very wrong but don't know what. I've been very lucky as it was clear cut from the start a positive RA test and then the positive pANCA. I really believe that helps enormously and from reading stuff on here may make it easier to treat as my experience it has been straightforward. x
Hurrah youve got a name on it ๐and they are taking you seriously. Good news in many ways! Good luck with the second illness , dont get any more though !!๐คฃ
No more . 4th autoimmune disease. rheumatologist said they like to hunt in packs .. wish they would bugger off ๐now I know the difference between the two I know if my meds are working or not and I can give two fingers to the gp ๐looking forward to that ๐๐
Whoopee! Glad you got on well J, not before time either. Hope now is the beginning to them finally sorting the problems you've been having. It's great that they are investigating your heat problem too. Hope all goes well. ๐ค x
Thank goodness you had a F2F and such a productive consultation but Iโm sorry you now have another diagnosis to add to your list. At least you are being referred for further investigations now and hope you will get some treatment soon. Xx
Sorry youโve got other things added to your RA but glad theyโve been identified as now you can deal with them and move forwards. Sending gentle hugs. xx
I did read the whole lot ๐๐I said at the beginning please donโt interrupt let me finish ๐
Iโm on amtripline ?? (Spelling) and referral to hand clinic/ physio and neurologist... and a letter to gp confirming not everything is RA ๐he wants to see me in 4 weeks. Were you given anything? X
Haha I like that!Yep he's writing to my gp suggesting I come off duloxetine and start pregabalin, have a trial of acupuncture (don't know about that), referring me to mdt pain management, psychology-based management, vitD, tai chi etc etc. I had to laugh a bit and crossing my fingers that my gp will take notice ๐ค
I am so glad it is identified along with other things now going to be checked for you. About time too. Well done for getting somewhere with it all ๐ค๐ป for the next appointments. Steps foreword for you at last. ๐ฅฐ๐๐ป
I'm so pleased you got to say everything you wanted to. Sorry it meant a confirmation of the Fibromyalgia diagnosis, but I'm so glad you've at least got some answers and a plan for the future. About time. ๐
As for your GP - eek! Don't envy you dealing with that one! I'm sure the Rheumatologist's letter should give her(?) a much needed kick up the posterior!! (Not that I condone violence of course)!!๐๐xx
Morning. Amitriptyline was prescribed to me ( I can spell it now after two years of attempts ๐). It really helped me with sleeping more soundly which does โhelpโ with energy levels. Have put on weight though, so keep an eye out x
in reply to
Thanks Iโm a bit porky already ๐ I do feel a good sleep will help . Took my first tablet last by.a better sleep hope it continues to improve x
Glad you have been able to make some progress J. At least you have a name to put on your symptoms. In my experience GPs don't seem to take any notice of what they are told and half the time don't listen. Sure there are some good ones but I haven't had a good GP for a long long time. Hope your GP listens this time. Xx
So sorry for such a late response to your post. So good that you had such a good f2f appointment. Really hoping that you donโt have too long to wait for the tests/physio and appointments to see other consultants. x
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