newbie

[astrajewel]

hi i am new here a newbie with rheumatoid arthritis, i am mary from glasgow i was diagnosed in nov 2016 since then i have had sulfasalazine, methotrexate, and hydroxachroloquine, the side affects have been horrendious to me and now dreading the next medication i am giving, has anyone had the same experiences with medication, and could anyone tell me if there are other sufferers that meet in or around the east end of glasgow i would love to meet and chat with others that are suffering the same, as

[LizzieR]

Welcome astrajewel! This site is full of lovely - and wise- people. It's been a life saver for me. I think everyone will tell you that there are all sorts of awful side effects to these drugs. I hope you find one that suits you- don't give up! I think the NRAS website has details of physical clubs etc. X

[Nik8210]

There is an nras group in Glasgow that's meets somewhere near Mary hill road once a month on a Thursday . Am sure that there is a Facebook group or The helpline at nras will give u all the details.

[astrajewel]

thank you for your replies i apppreciate your replies i sometimes feel sorry for myself and think its only me going through this hell i will check out the maryhill meeting thank you all for your help. and hope the next medication is the right one lol x

[28maggie11 in reply to astrajewel]

Hi I see my Rheumy in two weeks. Live in Bothwell. Cannot take methotrexate or sulphasalazine

On benepali but symptons gradually creeping back onwards and upwards

[Kim-NRAS NRAS]

Hi astrajewel

There is indeed a group that meets in Glasgow about once a month. When they organise meetings we post the details on our website here: nras.org.uk/groups/greater-.... Alternatively you can have a look at the group's Facebook page which they keep up to date with all their upcoming meetings and events: facebook.com/glasgowrasuppo...

The group is free to attend and you are very welcome to bring along a friend or relative. There are usually expert guest speakers at each meeting on a topic relating to RA, and also lots of time to meet and chat to the other people there.

I hope this helps, if I can provide any further information for you please give me a call at the office on 01628 823 524.

Best wishes

Kim (NRAS)

[Gnarli]

Hi Astrajewel and welcome. We seem to be in the same boat regarding the meds we've been on. First MTX then added in Sulphasalazine, which didn't suit me, and then hydroxy which made me feel awful. I am seeing the rheumy again on Tuesday but goodness alone knows what she'll come up with.

You're not alone in this. This forum is filled to brimming with lovely, informed, compassionate people who live with inflammatory arthritis every day. If you need to have a moan, a rant, share a giggle or ask about anything RA related there will be someone to share it with here. Huge hugs

Jan

[astrajewel in reply to Gnarli]

hi jan thank you so much for your info as you have been in much the same position as me ,like me you will be tearing your hair out , in saying that my hair is falling out just another prob to worry me lol x

[Gnarli in reply to astrajewel]

Yup. The hair is falling out and, for the first time in my life, it's gone straight! I'm thrilled! Apparently we won't go bald and it's a temporary thing. And here was I planning a wig for every day of the week. Shucks. Take care

J

[FatJoints in reply to Gnarli]

That made me chuckle about the wigs it's interesting how we can figure out wee positives for all this stuff. Does it take a while before your hair falls out? I haven't noticed any side effects so far from injecting methotrexate but it's only been a few weeks. Hope you're having a good weekend.

[Gnarli in reply to FatJoints]

I've been on the tablets for 6 months now and I understand the hair loss doesn't affect everyone taking mtx. Just lucky I reckon. Having a warped sense of humour always helps me deal with stuff. Its easier to laugh than cry after all. I hope you have a brill weekend too. Hugs

Jan

[enthusiatjc]

Welcome, Mary! I am on the same meds - sulfasalazine, methotrexate, and hydroxychloroquine, along with a couple more. The side effects are truly quite annoying, but they will get better with time. I had a lot of hair fall too, initially. I still have it, but not as much as before. I find that if I keep my hair short, they don't fall as much. But when I am stressed, I tend to literally pull out my hair (It's a real thing apparently - trichotillomania) LOL! I'm working on it. I hope you feel better

[beeckey]

HI and welcome sulpha did not suit me at all felt very sick on it and lost a lot of weight so was taken off it i was so relieved.Yes there is a group in Glasgow so hope you manage to get there it is a bit far for me i am on the Edinburgh side so wish you well

[Eiram50 in reply to beeckey]

Hi beeckey

Do you know if there are any groups in the edinburgh area?

[beeckey in reply to Eiram50]

Hi Eiram50 No there is no Edinburgh group well not that i know of sorry

[astrajewel in reply to beeckey]

hi, wish i had lost a bit of weight lol i seem to be gaining it i wouldnt mind but im not even having a wine anymore cause my stomach cant handle it xx

[beeckey in reply to astrajewel]

I lost over about 24 pounds but put it all and more when i stopped that med.Since starting Tocilizumab i have put on 2 stone so not happy with the weight but cant seem to move it not helping that i am not very mobile

[JulieMay]

Hi , I'm new too and only diagnosed last September. I am finding medication hard to tolerate as well and hope I can find a suitable one soon. Good luck to you

[astrajewel in reply to JulieMay]

hi julie im newly diagnoses to medication is difficult ive had 3 kinds till now with lots of side affects so im hoping next ones from r a clinic will be the wonder drug for me take care xx

[Hidden]

Welcome aboard 😄I've been on mtx just over 12 months now. No bad side effects and thankfully not losing my hair lol.

[astrajewel]

hi everyone its great to know im not alone and a big thanks to all who have responded to me i was at the end of my tether not knowing were to turn to next, but your responses have helped me even though i only signed in yesterday i realise now its all trial and error but it is hard work and heavy going, i do get down but try to stay as positive as i can, doesnt always work though lol, its my son i feel sorry he gets really frustrated looking at me in pain and sometime in tears and getting nowhere with medication,but hopefully one day i.ll get a med with no side affects and one that works. everyone have a good day well as good a day as you as you can x x

[ssing45]

Nothing worked for me except tnf's started on humora but switched to Enbrel 8 years ago. Works great no flairs and can hold injections if I get sick