Firstly, I must say that it is a wonderful feeling to know that am I not alone with my suffering aches, pains and general mutterings. It is such a relief to find peeps like me! I have wondered for a good while if anyone would actually understand how I felt and all I had to do was to do a little searching!
Well, my story! I have now been diagnosed with RA for nearly 2 years. At first I couldn't believe what was happening to me, huge fat sausage fingers, no ankles, immense pain and only 2 hours of sleep per night. I suffered in this hell for 9 weeks, until I begged (nearly on one knee) for my GP to refer me to a person that might be able to help. I did even mention the words 'private patient', hopefully to nudge him into getting pen to paper rather quickly. And as my parents were extremely worried (does it really matter that I am 38 years old and have concerned parents??), that they did offer to pay privately to get this sorted out as quickly as possible.
That glorious day finally came and I went to see a Rheumatology consultant and after a quick examination, I finally had an answer to my own personal hell, and I was diagnosed! A fantastic steriod injection in my rear regions and a prescription of numerous tablets clutched in my hands and I was sent on my merry way. And lo and behold, 48 hours later I was finally getting my much needed 8 hours sleep a night! Phew!
Two years down the line, I am now on the Methotrexate injection, which is going ok, although the idea of sticking a needle in ones leg still sends a cold shiver down my spine! And I also now have the pleasure of the Humira injection every two weeks, yippee! No doubt before long I will be leaking from all the puncture wounds! I have yet to have a pain free day, is this normal?? And my moods are more down than up, in other words I have turned into this grumpy old woman (yes, my Mother!!!).
I find it really difficult to try to explain to folks about my pain, they don't understand. I usually get 'Well if its that bad you shouldn't be at work and they should give you some money'. I've tried and failed miserably, but is it the answer?? I think not. For my own sanity, I need to go to my part time job every day, if I was sat at home staring at the same four walls, then they would certainly come crashing down around me. I would no doubt, with my grumpiness, be shipped off in my straight jacket into a padded room! Does anyone understand?
And just to top it all off, I have now contracted Shingles, just 6 days before I go away on holiday, happy days - not!
Thank you all for reading my story, it is really so good to read about normal people like me, thanks!