Uviitis sufferer: Hi guys, I hope its OK with you all... - NRAS

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Uviitis sufferer

DilysCWood profile image
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Hi guys, I hope its OK with you all to join here. I suffer with uviitis, an autoimmune inflammation at the back of the eye. It seems the drugs are similar to those for RA as I'm taking prednisolone, methotrexate, folic acid and calceos. Its heartening to hear others experiences on these drugs as they can sound scary! All the best gang :-)

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DilysCWood
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Welcome DilysCWood!!!! There are some people with uvitis with the added bonus of RA on this site. I look forewards to reading your posts.

LizzieR profile image
LizzieR

Welcome! X

DilysCWood profile image
DilysCWood

I am rather depressed about my uviitis treatment today! I had an appointment with my consultant on Tuesday (9 months later than he had wanted to see me!!) and the swelling and fluid is back so he's put me back on 40mg prednisolone (was on 5mg for about 12 months). I hate how the high dose steroid makes me feel and I worry about the long term effect on bone density (which is already low in my case). I feel that the length of time between appointments is allowing the uviitis to get out of control and then it has to be brought back with high dose steroids. I am considering complaining to the PCT but would it do any good I wonder?! Feeling neglected and let down!! Oh dear that sounds very "poor me" doesn't it? LOL

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