Firstly, Thank you to all you wonderful people on here for sharing. I truly believe that means you care.
So here is my issue and questions. I have slowly gotten pain on and off again since the "miracle steroids" are reduced in amount.
I have had a few tough days with a bit of low mood, work and physical pain.
How do you manage this?
I have so far not been prescribed anything... haven't asked for any either as the pain only really set in with the change of weather a few days ago and the newer lower dosage of steroids.
( sounds so wired to hear myself say that the weather is part of the problem!)
I have codeine tablets at home, but unsure if I can take that on top of all the other meds.
I fear for my liver... it must be struggling like mad. 😖 I have cut out my occasional wine glass. ( early drank to begin with but have a love of a glass now and then with a good stake.)
I have never ever had to take medication like this... and I worry about all the side effects.
The pain free weeks I have had recently, have been oh, so so heavenly.
I have not been able to stop commenting to my hubby about how amazing it felt to be with out the pain and how odd it is that I have gradually accepted to live with the increasing pain before going to my GP. 🤔😢
Please let me know how you manage and if there is any pain relief plan/medication that you recommend.
I read that in general to reduce chance of inflammation in the body I should minimize sugar in the diet. Any views on this?
All advice and experience shared is highly appreciated.