Fighting lgl Janet from Tennessee.Diagnosed 2009 lgl.

[janetmbales]

I was diagnosed 2009 with lgl. Mtx was given it worked and now stopped. I have been put on cytoxan. It has been two months.no significant change. Any input you could give? Thx

[EmmaS-NRAS NRAS]

Hi janet,

I'm not sure if you've found the right forum or not as from my understanding lgl is leukemia and this forum is for those with rheumatoid/inflammatory arthritis. Whilst Mtx is used in both, the doses that are used in rheumatoid arthritis are incredibly small compared to those with leukemia.

I wonder if the CLL community on here might be able to help? healthunlocked.com/cllsupport

or lls.org/ is the charity that supports people with leukemia and lymphoma and it looks like they have an online community too.

Hope that helps,

Emma-NRAS

[nomoreheels]

Hiya Janet. Have you by any chance been searching for the med methotrexate? If so this is the NRAS site, National Rheumatoid Arthritis Society. Whilst we are prescribed MTX it's low dose & not the high doses used for treating leukaemia. There are other Healthunlocked support sites where the members may be able to help. I'm afraid I don't know which specifically so I've copied some you could try below in the hope you'll recognise one

Lymphoma Canada

Fight MPN

CLL Support Association

Acute Leukaemia Support

HFI Connect - Hepatitis

Leukaemia CARE

Down's Heart Group

Non Hodgkin's Lymphoma Friends

Canadian Neuropathy Association

CLL America from Patient Power