Hi everyone, it's been a while since I last posted. A lot has happened. I came off MXT in the end after 3 months of hell and that was over a year ago. My anti ccp was 281 , RF 40 and esr, Crp all normal back in July 2016 and in march this year it's now 97.5., Crp and esr still normal , didn't do rf for some reason. Most of my pains have gone bar my hands that are still inflammed, tendons not joints and no swelling. I am controlling with naproxen when needed.
I am wondering if anyone can shed light on this. I had one rheumy tell me that if my anti ccp went down i would be defying medical science and I saw another the other day and she told me anti ccp count means nothing really, you need to go back on MXT. Talk about mess with my head.. would love to here your opinions . Thanks in advance