Any one on benepali for psoriatic arthritis

[mbw159]

Hi iv just started benepali injections just wonderd if people that are on this are finding its working for them

[LizzieR]

Hi,

I am on it for Psoriatic Arthritis. I'm afraid it hasn't done much for me, but I've also got OA in all my joints and I was diagnosed v late so had lots of damage. My rheumy tells me it's working at stopping the spread... How are you finding it? X

[mbw159 in reply to LizzieR]

Im not too sure yet as i started on this was on it for 6 weeks but then had to come off it as iv just had a foot fusion done so just started back on this now only done 2 injections so far iv also got OA i hope i will find this ok i was 44 when i got told i ha PS some days i feel terrible so have good &bad days have they said anything about going on other medication

[LizzieR in reply to mbw159]

Hi,

Ouch a foot fusion sounds painful! How are you getting on after it?

I' m 41 and got diagnosed last May, though I think I've had it all my life. They've said the Benepali is working - it just doesn't stop the pain and stiffness I have already. Therefore, they say that another drug won't make any difference.

I know, this disease is awful. For me it changes hour by hour- okay one hour, in agony the next. I'm at the point where I'm getting a motorised scooter- and I used to fell run!

X

[mbw159]

Have you been put on any pain medication im on quite a lot aswell as fentenal patches no the benepali is just to slow down the progression not for pain iv always been active lost 2 stone to try help a bit but not made any diffrence my foot is still in a cast and quite sore but hopefully things will work x

[LizzieR]

Hi,

2 stone? Wow, well done!

I have a stomach condition which means I can't take many pills- so I have a morphine patch and I also take liquid morphine if things get really bad! Is the foot fusion because of PSA? My toes are curling over - I'm worried eventually I'll have to have rods put in- I met someone who had that done.

L x

[mbw159 in reply to LizzieR]

Yes thats what they said iv also got nuroma in my feet that has to be removed one down one to go bloody arthritis such a painfull condition im still trying to be as active as i can but its getting harder x

[LizzieR in reply to mbw159]

Yep, I. Keep trying, but it gets harder. Take care x

[Sanbanan]

Hi mbw

I was diagnosed with PsA over 2 years ago.

I have been through all the initial drugs which unfortunately didn't work.

I have also been on Cimzia, Benepali and Stelara and I am now awaiting delivery of Cosentyx.

Cimzia and Benepali helped with fatigue but unfortunately didn't do enough for pain or progression of the disease for me. Stelara made me worse.

As a result, the consultant has said as I have not responded to anti-tnfs she is starting the new biologic Cosentyx which is made slightly differently which targets a different protein and has shown good response in PsA.

Fingers crossed it works and I hope you get a good response with Benepali. All theses drugs can take some time to work which is frustrating and it's all trial and error.

Wishing you all the best.

[mbw159 in reply to Sanbanan]

Thank you 😊😊😊