I am new here.
I had a fall in 2011 and never recovered, back and hip pain right side. Follow insidious bullying and fear which made me wonder about fibro as I read a link with this.
Then in late 2016, after a time of fatigue and worse pain at the injury sites, the injury pain seemed to improve for 2 months. I also had some thyroid replacement then. Then a new pain arrived - bilateral hips and SIJs, shoulders and sometimes foot/ankle. Intense and searing with stiffness. I reached a point of walking with a cane.
Initially, I was treated as PMR and steroids were great. But then rheumy said definitely not PMR, it was presumed sero neg arthropathy, inflammatory and said may become psoriatic arthritis or ankylosing spondylitis. Take methotrexate. I was relieved not to have fibro and that there was a treatment plan...
I showed letter to physio and she said it doesn't say Inflammatory and implied presumed sero neg arthropathy is nothing really. She treated me like a liar and I was sad because I am a bright professional and just desperate for answers.
Does anyone know what I have? Was 'presumed sero neg arthropathy' just a catch-all, fob-u-off diagnosis?
Am I truly back in the camp of "we just don't know?"