Hi all. Hope everyone's comfortable.
You may remember it's not me but my OH who has RA.
He's been on MTX for 10 weeks now - full dose of 20mg for the last 8 weeks. Folic acid the other 6 days of the week. Was on Prednisolone tapering dose for the first 4 weeks.
After I guess 4 weeks, it seemed like things were improving. Joint pain was much improved and although he was getting horrendous bouts of feverish chills and sweats, we could see light at the end of the tunnel. But the last 2 weeks have been horrendous. In the mornings the joint pain (ankles, knees, back (this may not be RA - he's always had it), fingers and shoulders) is as bad as it was before the MTX. During the day he can pretty much function ok, but by about 6:30 in the evening he just feels awful. Tired, in pain, depressed, nauseous...nearly always in bed before 9.
He's tried to speak to the nurses a couple of times but they don't seem interested and just keep saying he needs to wait the 12 weeks.
Both really at the end of our tethers now, and it's affecting our relationship because I hate that I can't do anything and feel like he blames me (I'm sure that's not really true it's just difficult being constantly unhappy). He said today he doesn't see the point getting out of bed.
Is this normal for MTX? Will things get better? Should we expect more from what the NHS laughably call his 'team'?
Sorry to go on but as the title says - really struggling.