OH has now been under the care of the rheumatology department for 9 months and today we had his third appointment. He is negative for rheumatoid factor and CCP but the consultant has always said he has an inflammatory arthritis. His CRP levels were in the high 20s at first and have been gradually rising to the 80s they're at now. He's currently on 25mg per week sub-cut MTX, daily hydroxy and daily sulfasalazine as well as folic acid on non MTX days. His joint pain is gettin better, but since being on the full dose of sulfasalazine he's felt generally unwell a lot and has had a particularly bad stomach.
That's the background, but my reason for posting is that today the consultant said 'I want to have a frank discussion about what to do next' and said that OH doesn't really fit with any of the diagnoses in the title of this post and so he's not sure on the best course of action. He said he's going to have a discussion with the rest of his team and then come back to us next week.
We're not unhappy with this outcome because the consultant said he isn't happy with how things are at the moment but the next treatment is dependant on the diagnosis - he will consider biologics if the team think it's worthwhile.
Has anyone else had this and what happened?