Hospital : Well it was a good appointment but I'm... - NRAS

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Hospital

Deejojo profile image
7 Replies

Well it was a good appointment but I'm

Confused about what drug

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Deejojo profile image
Deejojo
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7 Replies
oldtimer profile image
oldtimer

Have a look at the treatment options on the NRAS website. Then draw up a pros and cons list for each one for YOU. There is no "best treatment" - only the one that works best for you /suits you the best.

It is hard work, but at least you will feel better able to chose!

helixhelix profile image
helixhelix

Are they suggesting that you join a trial? As otherwise it is rare that you would be started on Golimumbab which is a biologic.

Deejojo profile image
Deejojo in reply tohelixhelix

Yes hun I am what's the difference??

helixhelix profile image
helixhelix

Under the NHS there is a fairly strict approach to the different drugs that can be offered to patients, and when. So basically you have to start with the traditional drugs and it's only if they don't work and your disease is still way out of control that you will be offered biologics.

However, research trials are a way to offer patients combinations of drugs that aren't normally allowed. From the photo it looks as if the piece of paper in the background is the info on the trial perhaps? Read it carefully as it should set our timescales and so on. And what the monitoring is, and what you have to agree to. It will also make clear whether or not this is a double blind study - which means that you may get one drug or a placebo.

Deejojo profile image
Deejojo in reply tohelixhelix

Thank you

Fra22-57 profile image
Fra22-57

I had to do the same.I think it's bad as they are the professionals and know better.It's just more wait til next appointment

Deejojo profile image
Deejojo in reply toFra22-57

Never mind hun I've. Been waiting 20 years sona few more months won't bother me x

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