Started biosimilars lsst week : Hi just started on... - NRAS

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Started biosimilars lsst week

Paulajolo profile image
6 Replies

Hi just started on Benapali last week. I am still experiencing fatique does anyone know if this will improve. My RA is much better. I

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Paulajolo profile image
Paulajolo
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6 Replies
mbw159 profile image
mbw159

Iv just started on it too the nurse said to me if its a change over from other biologics it can take 2 weeks but if your just going on it it can take up to 3 months let me no how u get on with it and me the same as iv just done 1 injection so far good luck the nurse also said to me a lot of ppl say this is the best one to be on

Paulajolo profile image
Paulajolo in reply tombw159

Yes I am full of hope for this drug. Everything else failed for me with allergic reactions so its the last resort. Only had two injections so far and still on 5mg of steroid to keep rash allergy under control.

Mhairi54 profile image
Mhairi54

I just started Benepali in the middle of December and pain wise, I'm so much better than I was. However I'm still struggling a bit with fatigue. Like you, I'm really hoping it starts to kick in soon!!

popsmith1874 profile image
popsmith1874

I've been on it since August and although my Ra had improved it's starting to lose its grip pain wise and the fatique hasn't changed since I went on it, I was at the Rheumy nurse last month and she wants to give it another couple off months but I have my doubts , I'm also on 20mgs off mtx , hopefully it works for you as everybody's different

Joang profile image
Joang

I started on Benepali 5 weeks ago and initially felt very spaced out and tired. However I now take the injection as soon as I get up and this has helped. I am beginning to enjoy the reduction in pain and the side effects are ebbing. I also take Methotrexate 25mg and Hydroxychloroquine and Sulfasalazine and Prednisolone. Hoping I can reduce these other medications eventually although I understand that they like to keep you on the methotrexate? Fingers crossed for us all that we get some relief from this horrible condition

Paulajolo profile image
Paulajolo in reply toJoang

Only managed 4 weeks on Benapali now have allergic reaction to it sames as all other drugs theyvhave tried on me

Been 14 months with this aweful RA and nothing works except Prednisolone of course these are not supposed to be long term. Try getting off them. !! Horrendous side effects too. I am down to 5mg but guess they will up them again next week when I go to Rhumy clinic. Arghhhh so fed up and depressed.

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