This is my first post, as I'm at a point where I just can't find any answers.
in 2010, I was diagnosed with rheumatoid arthritis, Ankylpsing spondylitis & over the last few years fibromyalgia & endometriosis. At the start we tried sulphasalazine & methotrexate of which wasn't working well, nor could I tolerate, I went on to enbrel which worker for a year or so, whereby during the time I has 2-3 episodes of neutropenia of about 1.8, I'm aware the threshold in these treatments is 2.5.
I was put on humira, which was effective until I was diagnosed with fibromyalgia in April 2015; in July 2015 I had a few odd neuro symptoms whereby humira was stopped pending investigation which was put down to fibro.
From then I had to fight to get humira back-In may 2016 we tried methotrexate injections for a month which failed, I was finally put back on humira in June. But since then I have been pretty much constantly neutropenic going right down to 0.9 after a bout of gastritis, but it's never been above 2.0 since then.
Sorry for rambling, the backstory I added as my assumption has been that my immunity is totally & permanently buggered from on/off these meds?! I do yoga daily & eat right, but I just can't get to a place where my bloods are ok
But anyone else in this boat? How do you guys live?as my work won't let me back if it's under 1.5, occ health/gp tell me I shouldn't even be working full stop. But I can't, I'm 30, my brain craves so much more than loose women!!! How are your social lives?
Sorry guys, just going loopy sat on this sofa prison & wondered how others get through it xx