Accessible literature?

Hi, I've just found out I have RA and have been reading about it a lot but it's complicated in terms of prognosis, drugs, side effects etc. Trying to explain it to my family is proving hard as they haven't done all the in-depth reading. Is there a leaflet or article for families that helps them to learn and support those with it? I feel like I'm going to have to be constantly explaining myself which is frustrating.

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  • NRSA do some really helpful explanatory leaflets/booklets which your family may find useful. You can download or order hard copies.

  • Yes, NRAS stuff is good. They also do a small "business card" with the main points on it - can be useful to hand to people.

    You can order some to be sent to you, or download it here

    nras.org.uk/publications/wh...

  • Thanks both. I've had a look through these publications and they're great. I've chosen one to show my family which will help a lot. Also good for me as so much of what I've been reading online is very depressing.

  • Yes can recommend those leaflets, honest, factual and also reassuring.

    As much as I believe in finding out as much as possible about your condition, Google can be a dangerous thing. As can these forums. There is every chance your journey down this path will be nothing like some peoples. There are lots of horror stories, eventually you learn to read stuff without assuming it will all apply to you.

    None of us know what's around the corner.

    All the best.

    Ade

  • Also if you have a partner I can hugely recommend this one:

    nras.org.uk/publications/em...

    I found it very insightful and it made a lot of sense to me. And I've had RA 17 years now.

    Ade

  • Hi

    Just also wanted to suggest that if you or a family member would like to chat things through then the helpline is here to help. The lines are open from Monday to Friday 9.30 - 4.30 on 0800 298 7650.

    Best wishes

    Lorraine

  • Try googling the 'spoon theory' which is another way of explaining the fatigue and how you have to manage day to day. Farm

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