I'd like some advise please. I'm not yet diagnosed but I do think it's a possibility. I am 41 but to be honest feel more like 81 😣. My bones & joints ache all the time & I'm also tired all the time. I could lye in bed all day if I didn't push myself to get up. I did my knee in back in 2009 & it used to only hurt after I'd done too much or sat down to long. Now it hurts most days & evenings & I have to sleep with a pillow between my knees. I also unfortunately suffered a bad (displaced) fracture of my 5th metatarsal last year in July. It took a very long time to heal & it was discovered I had osteopenia & low vit d/calcium so I now take supplements. My vit d level is quite good now but I have had 2 blood tests in the last 2 months with my inflammation markers (ESR & CRP) both raised & getting higher. I also have a very high b12 count - more than double. My GP isn't doing anything about it stating I probably am just fighting an infection & she would only be concerned with a low b12 test not a high one. This concerns me as everything I have read says a high b12 shouldn't be ignored. My consultant last year when I broke my foot thought that I may have rheumatoid arthritis but typical NHS didn't do anything about it. I am fortunate to have private health care cover now so want to press my GP for a referral to a rheumatologist but don't know who to go to. I also have/had endometriosis & I know from personal experience that skill level amongst endometriosis specialists vary. It took me 20 years to realise this & seek out the best treatment available to me. I finally found an accredited endo specialist last year & underwent almost 7 hours of surgery to thoroughly remove my endo. I really don't want to wait 20 years to receive the best treatment available to me if similar issues exist within rheumatology treatment. Therefore could anyone please recommend a good rheumatologist? I live in Northamptonshire (East Midlands) but am willing to travel to most places within the UK except London if I can help it as I'm not too good on trains! I travelled 3 hours north to see my endo specialist so driving further afield for good treatment does not phase me. Any help/advice would be very much appreciated. Thanks.
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