I have not posted for a while as have been 'proper poorly' following my fall.
I had an appointment with my Rheumatology Dept recently, to see my consultant...yet again I saw someone different, with a different take and a different attitude. This lady, just read notes and referred me back to orthotics for new foot splints. she said she was covering for the consultant I have refused to see due to his behaviour towards me. I tried to explain levels of pain and fatigue but to no avail. She said she would like to increase Mtx dose to improve current situation but would leave that until next appointment as I was still having side effects. Next appointment 4 months time!!.
Explained problems with my hips and knee, she briefly moved my legs up and down while I was sitting in the chair... Then had the following conversation, "yes, you have bursitis in both hips". Tell me something I don't know! "You need Physio", I explained I was still waiting for a Physio appointment from last consult. "Yes", she says, "they are very busy". "Well, why don't you take yourself off to the local pool and walk up and down in neck high water for 20 minutes, twice a week". DIY Physio...some days I can't get out of bed let alone get to the local pool on my own, get undressed into a swimming costume and down the slippy steps into the water. "Ah yes", she said, "but you need to exercise those joints". I used to swim regularly, but its now too painful. "Just walk, don't swim". Went home and tried to make sense of it all. Did she refer me to Physio?
Later that week, got a referral for Orthotics and the results of my Dextra Scan, from the lovely consultant I saw previously (early March 2016)...diagnosis I have Osteoporosis as well as RA and an increased fracture risk. They were going to write to my GP with a treatment plan. Still waiting for urgent appointment for steroids (in joint) for hips and hands) from the March appointment.
Hurrah, appointment for steroids 22nd June, they normally give some relief so sort of looking forward to that.
Still have soft tissue damage to ankle from the fall, My lovely GP suggested Physio, I had to laugh really. Starting new meds for Osteoporosis after the bone profile results are back, hopefully soon. Also have Oral thrush from Mtx and a possible infection in back of the throat, awaiting results from swabs. Should I be increasing the dose?
Thursday 23rd June, I was feeling better after the steroid injections and looking forward to getting some mobility back at least for a little while and possibly starting my DIY Physio sessions again. Then as I tried to get up this morning my lower back went into spasm and I am back to being virtually immobile and in a lot of pain, could this be to do with the steroid injections in my hip joints?
It seems to be one step forward and two back at the minute, but my GP is great and will keep pushing for some action one way or another.
The upside of being immobile is I can look at all the wildlife in the gloriously green lush garden (read overgrown) from my window and listen to Radio 4 in peace. Life is full of little pleasures
Ooops its a long one again, not quite a rant but getting there, sorry folks.