Truro cathredral......

[sylvi]

We went to truro Cathredral today and i have got some smashing photos to show you all.Mind you the fatigue is getting worse and we were back at our apartment by 2.30pm so i could rest to come over here tonight. I try to push through the exhaustion and fatigue,but it seems to make it worse.xxxx

[Smiler53]

It's a lovely Cathedral isn't it Sylvi. I didn't realize that it wasn't that old. We did a quick visit there on our way home from Cornwall last year. I would have like to stayed longer really, so will have to go back. Hope you pick up tomorrow. xx

[Hidden]

OMG Sylvi, so beautiful. I love looking at your photos. The architecture is so spectacular!!!...why oh why did my ancestors immigrate to Canada back in the 1800's????

[Hidden]

oops, I also want to tell you to rest up. Exhaustion is horrible!!

Take care

Sue

[Daph39]

Sylve, you are an inspiration to us all. Take care and enjoy the rest of your hols.

[popsmith1874]

have a good holiday , love the photo

[Jeanabelle60]

Sylvi I'm going through the same thing myself. I look after two elderly and increasingly demanding parents so I need to be able to look after things at a moments notice. Last week I had to take three days off, I have a brother here staying with them so they were being looked after. Anyhow the three days going from the sofa to the bed and back again really did help, lots of rest is the only remedie, for me anyhow.

Yesterday I took my brother to a nursery hidden in the beautiful hills of Donegal. The sun came out after nearly a week of tropical rain. The flowers and displays were breathtakingly gorgeous. We spent over €150 but worth every cent. My brother is a bit of a gardener and he is revamping some of the beds that my parents are no longer able to maintain.

But, half way through the walk around the nursery I had to go looking for somewhere to sit. I found a lovely large wooden seat, among giant ferns that I just sank into......the filtered sunlight and mild breeze with the scents of a thousand fragrant flowers and the buzzing of bees all around me were just the receipt for the gentle relaxation I needed. I was happy to just sit, the thought of having to move and drive home was almost overwhelming but it had to be done.

I have tried to explain what chronic fatigue is like to people, with little success. They would say things like get more sleep at night! Nope nothing like that at all I say. Feeling sleepy can sometimes be part of it but I prefer to say that I feel 'lifeless'! Like my body doesn't belong to me......or as Cathi on this site describe it as 'like walking through treacle'. Another description is like when you have one of those dreams where you are trying to run but are just incapable of moving no matter what horror you are trying to escape from.......it's a bit like that, for me anyhow.......

No matter your fotos always great, thanks. All the best and take care, Jean. Xx

[nomoreheels in reply to Jeanabelle60]

Sulking.....it's me Jean who's regularly walking through treacle. Feel like that at the mo, a tiring 4 hours at hospital yesterday for h's pre op before yet another sternal repair on Monday eek! x

[Jeanabelle60 in reply to nomoreheels]

Heels we can only do our best, we can do no more. Fatigue of the kind we experience does pass but never really goes away. Now that my disease is becoming increasingly more active I find the fatigue is always lurking in the undergrowth just waiting to devour me.

Hope all goes well with your hubby. Xx

[sylvi in reply to Jeanabelle60]

You have described me to a tee. I can sleep at night,but only for about five hours six at the most. I can function during the morning,but by lunchtime i am just about out of it.When i am home i don't do anything at all and i am still the same tired by lunchtime. The drs say you have to exercise but how the hell do you exercise when you don't have the energy for anything. I love garden centres,we went to eden today to do the second biome and we came away with £25 worth of plants. God knows where i am going to put them but i will find a place,the problem will be getting them hoem without damaging them on Saturday.xxxxx

[Jeanabelle60 in reply to sylvi]

My Rheumy nurse, the beautiful Bronagh, told me to 'listen' carefully to your body.....it's telling you something.....it's telling you to rest. We just have to do things when we can and rest when we can't. While I was on the steroids I could have cleaned every house in the street.....Now there are balls of fine white fur in every corner of the hall (my terrier Kells bless her).....they have been there for days and don't get me started on the kitchen.....it's all easy to say but I have two elderly, frail and febil parents both demanding my attention......what do I do when I'm dragging my big arse and with the energy of a new born kitten? We do our best, can't do anymore than that......bless me!

[sylvi in reply to Jeanabelle60]

Bless you darling and me as well. I am in the lucky position of having a hubby who does it all for me.xxxx

[helenlw7]

From experience ov 12 years of RA it's best to 'give in' to the fatigue when it hits and have a sleep. You'll feel much better for it after.

[Jeanabelle60 in reply to helenlw7]

Don't you just love that feeling when you get into/on top of the bed and just curl up into a ball and let your body take over because you can't? Yes you do feel better for it.....take care. XX

[sylvi in reply to Jeanabelle60]

You too darling.xxx

[Sheila_G]

Hi Sylvi. You are doing really well and it sounds like you are pacing yourself. Continue to enjoy your holiday and keep the lovely photos coming. x